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Posted 5/4/2014 8:25 AM (GMT 0)
I hope you understand my questions. I have been having very bad episodes of HE . So I decided to go back on Lactulose (is it still good to use when the expiration date is 12/1013) I still have six quarts) they have not been open and have been in a dark closet. For a while there I couldn't handle the stuff It gives me lots of gass, I hate the taste and stomach cramps, right now I can't thinkl

Since I will be going to Mayo at the end of the month I'd better get back on it along with xifaxan. I have not felt well . I prefer to sleep. but right now I am having no sleep. And I lost an entire (misplaced)bottle of trazodone, which was given to me for sleep. That's what Dr. prescribed. So I guess I will continue taking melatonin, till the trazodone pops up when I no longer can use it.

I watched Chicago fire that is one of my favorite programs. I also like to watch House eventhough he is a real jerk. Reminds me of my Dr. sometimes.

Post Edited (lavendar) : 5/4/2014 2:31:34 AM (GMT-6)

Posted 5/4/2014 11:26 AM (GMT 0)
Hi Lavender, Sorry you are struggling with HE and sleep. I would make a quick call to a 24 hour pharmacy to check on the expiration date. I have a feeling it is going to be good still. My husband looses everything when HE is bad. So frustrating for him. Hang in there. Big Hugs
Posted 5/4/2014 11:30 AM (GMT 0)
Lav, I don't think it would hurt you but the expiration on Lactulose is specific. I believe it just looses potency. I also don't care for the taste and stopped taking it for awhile and became disoriented again. Had to go back on it, Seems we are stuck with the symptoms but better we do what it takes to keep us alive. Can you call your docs and have them fill another prescription but this time use GENERILAC it is the generic form and doesn't have the terrible syrupy sweetness of the Lactulose.

Sorry you aren't feeling well and hope this suggestion will help. I also have constantly taken Xifaxin although I've run short in between refills. It's not a option my friend, You have to take it.


Ziff
Posted 5/4/2014 6:44 PM (GMT 0)
Hi Lav, you are not alone in your dislike for the taste and side effects of bloating, etc with lactulose....but the times I delay it to make it to the Dr off, etc...i know it by the time I am back home and have to do what a nurse says is take it every 2 hrs till the lethargy, etc. Clears. I canno t miss xifaxan either. I sometimes mix it with ginger ale...not great..but at least thins it. Also, you are not alone re Dr house..
Zif, thank God for your posts...when things get off the wall with h e, we who have it dont need options or pity..as you know.. We could easily rationalize ourselves into all sorts of wrong decisions. Keep saying it like it is..no option...i really needed to hear that too! Lav, wish you all the best...you can do this..i set alarms so if I go to sleep I can wake up for next dose. music. 👱

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Posted 5/4/2014 10:06 PM (GMT 0)
Your quite welcome Music, I follow your post along with the other newer folks to our group. I have to say I've never seen a more lively bunch of new comers that are so knowledgeable as you all. We haven't had this many people sharing this much info since recent memory. Thanks to you and the others for being who you are. Keep ya head up, We are all in this together.


Ziff
Posted 5/5/2014 7:07 AM (GMT 0)
Thanks for the rapid response I guess I'll write myself a letter and tell them that it came from u I'm gonna knock myself to sleep so I can get up on my feet, And call the pharmacy down the street, ask him for another bottle of pills then hope it helps me sleep ... Only if I could carry a tune" smurf

Thank you blush
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