Posted 3/27/2015 1:19 PM (GMT 0)
Greetings,
So for those of you who helped me through my Solv/Rib hep c treatment and trying to figure out why i was actually worse post treatment, we finally got to the bottom of everything.
Good news all around finally, I continue to have a 6 month SVR status and found out that I have Chronic Fatigue Syndrome with underlying Epstien Barr Virus and HHV6 which apparently the hep c treatment triggered/escalated into overdrive.
I'll spare all the specifics, but after much distress and persisting, i finally went to a cfs specialist and started anti viral treatment about 3 months ago. I have not felt this good in a very long time and knock on wood continue to put this unexpected disease in remission. So for those of you who have read my agonizing posts during this difficult journey, yes, the ribavirin/solv treatment was tough, it was the triggered/escalated cfs/ebv that made me feel so much worse. I guess i had to go through this to figure it all out thank god, so if you can avoid the rib try to do so at all costs, but if not for rib/sol i may still be dealing with the horrible, debilitating fatigue, brain fog and not know what was wrong w me.
thank you for all of the support during this time and wishing everyone the best during there own journeys.
Mia