Posted 7/6/2006 2:11 PM (GMT 0)
connie,
i too had hep b and my body kicked it,and hubby tested positive for hep c the first time but then we were told,,,,,,,3 mths later,that he doesnt have hep c,that hes had it before but his body kicked it,,,,,,these drs seem to think we are not intelligent enough to have all the facts.........we are cosulting with his regular dr tomorrow about possibly changing specialists,,,,,hes got a gastro dr and there are no hepatologists in this town but ive found a few in close cities,,,one of which is at Ohio State University,,so we may start traveling. i saw the kidney problems too but i think interferon could cause this too,and many other problems,,,,,,btw his specialist is not going to see him til Jan ,,,,,,,,,,way too long i think when hes on such serious meds,,,,not to mention the other health issues he has. hubby gets anxious about changing drs,he changed regular dr a few months ago because we didnt feel his other dr knew anything about hep b,,,,we had to educate HIM when we saw him so he changed to my family dr....which hes happy about now ,,,,,,but now another change may be in order. his anxiety is so bad lately,,,,,he doesnt sleep much at one time,is up and down all night long and naps during the day for short periods of time. i asked him if he wanted to stop the injections,,,,told him its HIS body and HIS decision alone,,,that if he feels its wearing him down too much id support him all the way and wed find alternative treatments/drs,but he said ive done it this long im goin to go as long as i can. i am just so irritated that his dr didnt discuss ANY other options with us,,,,especially when his viral load is exactly what it was when starting treatment,,,,so hes weaker and sicker yet the injections dont seem to be helpin at all,,,,such hard decisions to make,,,,,i want hubby to make his decisions concerning his body but at times hes so out of it and doesnt focus well,so i just try to put it to him in simple terms and tell him what i learn and watch his reactions,,,,i just dont know what is the right thing to do,and i feel like we cant really depend on the specialist to help much,,i cant wait to talk to the family dr tomorrow,hes the only dr who seem to lay it all out there for us and talk straight. i pray every day that we make the right decisions,,,,,take care connie