JT80 , gosh you are so young to be dealing with this...I too crave sugar, don't really know why but I do. I cant eat fiber, ie vegies, fruit, cant take fiber pills or nothing. If I stick to a dry potato, baked chicken, or chicken noodle soup, I dont get bloated or have pain but it leaves me starving... So like today I ate and now I am like 9 mos. pregnant and in so much pain. My IBS causes air in my intestines so my bowels will not move unless I do the enema thing to get the air out first and then everything comes out. My doc is trying to figure out what the heck is going on. I have tried everything for the IBS, and I am lactose intollerent too. Cant eat eggs or fish either so not much I can eat.... I live in Oregon and its a small town so there is not much help available on my kind of insurance. Some people think oh its IBS so its ok....well no it is not, because they do not even have a clue what we go through. I have been terribly ill since April when I had the Acute attack and was hospitalized then and then a couple of weeks ago.
I always try and think of other people that have it worse than I do with cancer or something like that so I try to feel lucky that I am not dealing with that. But I cant help but feel cheated that I am missing out on life so much. My grandson wants to know why Nanna is always so sick, and that bothers me alot. I have had IBS since 93 and it was not so bad in the eairly years but this year is the killer.... Its so bad that I try to sleep as long as I can at night and find myself not wanting to get up in the morning because I know that I will be sick and dont want to deal with it.
I wish that I had some good words of encouragement for but words seem to fail me.
I hope that in the future they will find something that works for us, and simple pill would be great....ha ha.
Just try and find good in all you do and the people you deal with...simple pleasures are the best... feel better my friend and all my prayers are with you....Leslie