MISERABLE AND CONFUSED

I have been on this roller coaster for nearly a year only it's gotten worse consistently since January. I had been just dealing with it-but since August 7th it has been a whole new ride that is scaring the hell out of me. I have been diagnosed with IBS; GERD; Gastroparesis; Fatty Infiltration of Liver and Anxiety. The Anxiety is old news-really I think the IBS is too-but the IBS symptoms have been getting much worse all year. I have lost 60lbs since January and now for the last month I have had diarrhea every morning except 3 days where I was constipated but had soft BMs with straining. I continue to grow weaker and weaker and the doctors keep telling me it's stress. It doesn't matter what I do though-every morning-like clockwork-I wake up-my bowels are VERY noisy and sounds I have never heard before-and then BAM-Type 7 (oddly mixed with Type 1) for 2-3 hours. Then I'm usually done until the next morning. I have tried probiotics-all liquid diets-BRAT diet-regular diets-now I am eating one small meal a day-having headaches and getting very weak. The GP thankfully is not making me vomit-but these are ALL new developments-the GP is something very, very new. I am so lost-so frightened and so frustrated. I have had the following tests:::

1. Upper and Lower Abdominal Xrays (Normal excepting nabothian cysts in cervix and fluid in stomach)
2. Colonoscopy (normal)
3. CT Scan of torso with contrast (mild fatty infiltration of the liver-cervical cyst-ovarian cysts-enlarged spleen)
4. Upper Endoscopy (chronic gastritis-food in stomach indicative of gastroparesis)
5. Abdominal Ultrasound (enlarged spleen-ovarian cysts-fatty liver)
6. Lots of blood work-all seems to consistently fall in normal ranges
7. Stool Sample-Normal (tested three times now in 6 months)

I am now getting bad headaches-bad cramping-sharp pains-very loud noises and diarrhea that seemingly will NOT go away-I am getting nothing from my PCP or GIS-does anyone else have or have you ever had similar problems and if so do you have ANY advice? I feel like I'm drowning here and the only person who is willing to stay in the water with me is my loving husband-he's with me every step of the way but we are both going insane. It's now affecting my muscles so badly that I am having tremors and the headaches are constant. Also-I have been in ketosis since May with varying degrees of severity-I am not diabetic-I was diagnosed as pre-diabetic a year or two ago-but my recent A1C has me in upper limits of normal.

PLEASE HELP_I FEEL VERY ALONE IN THIS

Hi, I just wanted to say I'm sorry you're feeling so isolated and sad, and I'm sorry I don't have much advice since I'm new to understanding what IBS does to people, but it seems like you have great support from your husband. Definitely, don't lose sight of that. I really hope you find a good way to relax as much as humanly possible, since it seems like stress & anxiety make things harder to bear.  Do you have someone else you can go to for support, other than your husband? 

Post Edited (CloudReader) : 9/8/2011 12:59:08 PM (GMT-6)

Basically he's not saying much of anything. He says that they are all insignificant findings and not a big deal. He said to basically stop worrying about it but the thing is it's not a matter of worrying it's a matter of illness. I have only had an ultrasound of the gallbladder done (2x) and they said it was normal with no stones. He claims it is all caused by stress but has not done any testing yet to look for a cause of the GP; the fatty liver seems to have developed very quickly and I don't drink at all-he's the best GI doc where we live by far so I'd imagine to get a worthwhile second opinion we'd have to go somewhere else but part of what I'm dealing with now is that my husband thinks the doc must be right and so he doesn't see the point in any further testing and I can't get him to understand how difficult this is getting, a few months ago it was bearable-now it's just insane..

Post Edited (MADLYinLOVE) : 9/12/2011 2:48:41 PM (GMT-6)

Many Celiacs test negative on the blood test and endoscopy, I tested negative twice myself yet after testing children on a whim, one tested extremely positive (its a genetic disease) I realized that this was what made me chronically ill for over 12 years. Anxiety, shakes, diahrea, memory probs, brain fog, joint pain, chronic fatigue, etc etc all went away treating for celiac. 3 months on gluten free diet for me to start noticing improvement 6-9 months dramatic health turnaround. Worth a try if nothing else has worked or been diagnosed thus far.

alot of people think they've tried the gf diet with no improvement....reason? even non gluten foods ie. lays plain potato chips, have 300-3000 ppm of gluten on them simply from running on the same belt as gluten foods. Takes 50 ppm to keep a celiac sick. so be rigid and strict about the diet, not one bite and avoiding all crosscontaminated food or cookware used to make gluten foods. if it doesnt help at all at least you will have ruled one more thing out for certain instead of rely on shotty testing.

Best wishes