Posted 2/13/2014 5:14 AM (GMT 0)
Getting a CORRECT diagnosis of all unhealthy symptoms is crucial, as they are very likely related. My correct diagnosis came in 2008, through an exhaustive search into what exactly got "triggered" that made my neurological pain/attacks go off the chart when my husband infected me with HSV2. A great gastroenterologist, after inconclusive testing, put every symptom I had into his Med palm device. After years of misdiagnosis...for my entire family...hereditary coproporphyria. Knowing that, it made sense why the genital herpes my husband (now X) gave me went systemic. Now my family can take the correct measures to minimize the attacks. But, I can now deal with it in the best possible way, not making it worse with toxic food, water and medications. Porphyria attacks can be minimized, complete diagnosis is by DNA testing. Turns out, my IBS was indeed Herpes Colitis, flaring up mildly when exposed to herpes (colds) I have immunity to, and badly when exposed to herpes (colds) I have no immunity to. A correct and complete diagnosis for many conditions is difficult to acquire in most medical communities. Some of our family misdiagnosis were, prolapsed uterus, RSD(now CRPS), fibromyalgia, migraines, burst ovarian cysts, appendicitis, gallbladder disease, hiatal hernia, IBS, Crones, pre cancerous skin. ALL WRONG...all HCP. The Porphyria Foundation estimates 1 in 7 Americans is expressing porphyria, and is misdiagnosed. Getting the best help the medical community can actually offer shouldn't require tenacity and great health insurance, unfortunately, in America it does!