It just keeps getting worse.

When I first found this forum last feb I just knew I was dying & with alot of suport I got over that crazy notion. Now I'm begining to wonder again! I started out doc's thought colon C, turned out just ibs, then they thought lupis geuss what, no lupis. Here a few months ago I started having crazy symptoms along with my normal, which is hurting aroud left rib that sometimes goes into back, const or D, left breast cystes, dizzy spells, tachardia, hair loss, the list could go on & on. Now I am having trouble keeping blood sugar level up. My mother had to call 911 here a couple of months ago bs was21. I now can catch it at 48-45. My doc sent me to hospital for a glucose tolerant test & a few hours into it I bottomed out again. I had to run & get nurse & she informed me there was nothing wrong with me, that my bs's had been good all through the test & that I was having panic attack. Oh & I was holding my glucose monitor in my hand with a reading of 45! I was so weak I couldn't stand & argue no more so I went back & sat in waiting room fighting the urg to walk out . about 15min later she came running in telling me I had to get some sugar in me that she was sorry I was right! The doc thinks it is reactive hypoglycemia. I have to wait 2wks for my insullin levels to come back before he knows where to go from here. He has told me that if the insullin levels are high then he suspects tumor on pancreas or adrenal gland. This is what really p's me off I kept telling them that I thought it had something to do with pancreas or my adrenalin because at times I get surges or something. He did tell me thst most are benign, but I live in the real world & my luck sucks.

Right now I am seeing family practioner. I have been to 3 gastro's , 3 internalists & 5 practioners , oh,Ialmost forgot 2rheumy's. I have had my best luck at finding out what is wrong with this one. I had a real nice talk with him about what I expected from him from the get go & he explained he was just a practioner but he had no problems with getting me into specialist if I needed to be sent.

Sometimes a good GP can be the greatest person in the world to see about your symptoms, even if they don't "specialize" in the GI system.  My nurse practitioner has been my greatest advocate and the best help I've found.  Make sure if you do see another specialist that you keep in close contact with your GP throughout the process so they are kept up to date!