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originally dx with crohn's disease, now ibs

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Irritable Bowel Syndrome
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Posted 11/25/2007 10:37 PM (GMT 0)
so I am worried that this will affect my disability down the road, I know many people with gastro problems have been misdiagnosed, but has anyone had any experiences with how it has affected their disability? I really can't work. It's hard to hold down a job when you are running to the bathroom every 5 minutes! help!
Posted 11/26/2007 2:20 AM (GMT 0)
There is no way that you were misdiagnosed from CD to IBS because CD shows inflammation on the colonoscopy...maybe you're mistaken and what you have is crohns AND IBS, which is exactly what happend to me...crohns for 13 yrs and then IBS on top of crohns.

:)
Posted 11/26/2007 5:49 AM (GMT 0)
We hear more frequently that people who were originally diagnosed with IBS are later found to have Crohn's, but not usually the other way around, unless your doctors simply disagreed with each other. 

I feel your pain acutely - I run to the bathroom 20 times a day and no one can pinpoint the cause.  I am a medical student and it is rapidly becoming a serious issue.  I don't know what to do, other than speak to our student services department...

Posted 11/26/2007 11:30 PM (GMT 0)

Well here's the kicker, GI doc had me do capsule endopscopy and since he saw no active disease, he said, "no Crohn's" and when I confronted him last week about this since I am in pain and going 20 times a day he said, oh this is better for insurance purposes and if he is out of town and I have a flair up, another dr won't just "throw" steroids at me etc. I had a bunch of stool tests, still have terrible left side pain and go back to see him Wed. I know what I say in black and white on those other biopsy reports from two different drs three different times and they all said CROHN'S!!! Oh, and he still wants me me to take my pentasa. Does this make any kind of sense? 20 years with this disease and I am still going through this nonsense? I'm pulling my hair out? Should I see another dr?

Posted 11/27/2007 12:42 AM (GMT 0)
Definitely see another doc and make sure he gets the copies stating CD...like I said it's not uncommon for one to have both CD and IBS, I'm living proof...and there are many others as well.

:)
Posted 11/27/2007 4:46 AM (GMT 0)
Why couldnt he just say your CD was in remission????? I too am on SSD for my Cd and wouldjust KILL if I lost it!!!! I think the key work is "Active" talk to him and see if the wording on nay forms can be discussed. In the world of insurance companies.. it is ALL semantics. good luck
Posted 11/27/2007 5:36 PM (GMT 0)
Penncort - I was diagnosed with Ulcerlative Colitis in 2001 - after a colonoscopy. I am having gastric bypass surgery so they needed to check my intestines to make sure I was even a canidate for the surgery. After the colonoscopy this time the doctor told my husband and me that he didn't see any signs of UC - but that he had taken samples for biopsy just to be sure - and they came back negative. I too was then diagnosed with sever IBS-D.

It was a big score for following through on the surgery - but left me boggled as to how I could have been wrongly diagnosed - or it just disappeared as I'm going as often as ever now.
Posted 12/2/2007 5:17 AM (GMT 0)
I have no ideas about disability, but I wanted you to know I am one who has been diagnosed with crohns and then undiagnosed. I can't tell you why all my testsl showed as CD and then never again. it is frustrating.
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