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Posted 1/6/2008 1:34 AM (GMT 0)
I see I have answered this post twice and didn't even remember the frist one....Oh My!!!
Posted 1/6/2008 3:05 AM (GMT 0)
Hahahaha, Frank....... Smilin' with ya on this one. tongue

 

Posted 1/6/2008 7:02 AM (GMT 0)
this thread has freaked me out...i go thru everything that has been said on a daily basis...i just thought i was getting older (28) or it could be from all the fun i had in my late teens and early twenties...ive never told anyone about the drunkeness feeling because it didnt make sense to me...how could i feel drunk with nothing in my system, not even sugar or caffeine...i was told i have lupus last year but not to worry cause a couple tests came back positive and a couple didnt...i dont even remember what he said cause i have no memory anymore...the dr said just to stay out of the sun and it wouldnt bother me...but ive noticed several similarities thru reading this site...hands, feet and nose always cold...no energy...always tired with plenty of sleep...weak arms and legs...just thought random things happening based on age and lifestyle...but this brain fog post is way to similar to dismiss...should i get a 2nd opinion or is it just something i have but not as serious as others and it wont bother me...

Posted 1/6/2008 7:05 AM (GMT 0)
Judy,

I have all the symptoms plus a few more that you describe. Mine are due to Hashimoto's encephalopathy. It's a rare disease in which it is thought that antibodies are attack neurons in the brain. It does affect your life extensively. I hope your condition gets under control quickly. If you don't mind, what meds do you take.
Posted 1/6/2008 10:51 AM (GMT 0)
Hello vdubshani!! Welcome to the forum! Oh sweetie . . . you should spend a fair amount of time learning about Lupus. For one thing, you will recognize all the scattered symptoms that seem unrelated, but are all part of this disease. I didn't realize until I came to this forum, that I had lots of symptoms. I just didn't know these things weren't normal.   There are some great tips for new members in the topic "Lupus Resources" . . . see the link in my signature.  Also check out the other links there.  I'm going to copy your post into a new topic so the others can say hello. Your post will be lost in this topic and the other members won't get a chance to say hello. I'll title the new topic "Welcome to New Member vdubshani".  Here is a link:  https://www.healingwell.com/community/default.aspx?f=29&m=1010345 Blessings!
Posted 1/6/2008 11:48 PM (GMT 0)
Major prob the old memory and concentration with me too.
And I HATE others saying "oh I know exacty what you mean, my memory is so poor and there isnt a jot thing wrong with em.
I am really struggling with trying to come to grips with the techical stuff of photograhy and printing so that I can become pro in a different medium as I had to give up the painting but I find it SO difficult to remember stuff. Almost impossible. I have spent a fortune on tuition and I feel I have gotten nowhere fast.
Oh my twin when she sees my chihuahua go AWOL she says to her c'mon GET A GRIP!! it cracks me up it does. This tiny dog being told to 'get a grip!' It sounds so funny too.
I think I may be getting nearer a dx. defo sjogrens now, I feel and polymyostitis. Anyone any info on this. I think the biopsy has indicated myostitis and I have done a study and feel it is this one.
thanks someone here for suggesting how I find FREd miller, I got him and other experts in the field.
Well, better 'get a grip and try to sleep. Hard with the tinitus, jigging of the feet and vile burning sensation in my feet and hands.
such is life.
xxAnn
Posted 1/7/2008 7:58 PM (GMT 0)
Emmi, I take the following meds: prednisone (60mg), plaquenil, imuran, clyclosporine, lexapro, clonodine, toprol xl, benicar, procrit, vasotec, boniva, ec aspirin, zemplar, omacor, Bactrim DS every Mon, Wed, Fri, Zetia, Lopid, and pacerone. I've been in a constant cycle of trying to taper off the prednisone forever (like everyone else). It's definitely a love/hate relationship! Judy
Posted 1/8/2008 2:50 AM (GMT 0)
my memory is horrible right now.  I'm in the middle of a CNS lupus flare and I can barely remember what happened an hour ago let alone last week. 
Posted 1/8/2008 2:58 AM (GMT 0)
Hi momof2girls. Can you tell me what a CNS lupus flare is like for you? Do you only deal with CNS problems? If you don't mind, how did your Lupus start and how were you dx'd? Just curiois.
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