Does heat affect you like the sun?

That wasn't a very clear subject line...

What I mean is, do you find that just being out in extreme heat can cause you to flare, even if you're careful to stay out of direct sunlight?

I know I'm sun-sensitive...I broke out in rashes from sun exposure years (over a decade, actually) before I was diagnosed with anything autoimmune. I'm also very pale, so I always slather on sunscreen and look for shade if I'm outdoors. But I find that just being out in the heat for a while is draining. I almost always end up with that flu-like feeling later in the day, even if I'm just sitting in the shade chatting with a friend. The heat just zaps me.

And we're headed to Florida twice this summer...lucky me! LOL

Just wondering if others have experienced this or if it's just me.

Too much heat leaves me lethargic and ill. I get sick to my stomach and don't feel like drinking or eating and it takes quite a while before I recover. I cannot survive summer without A/C or central air. I avoid being outside like it is poison because it pretty much is to me. I do not deal well with tempatures outside the 70-75 degree range. Too much cold leaves me in so much pain I want to cry. I can't win either way. I passed on my problems with heat to my daughters and only time will tell if my son has that issue too.

I personally avoid being outside because even in the shade you get UV exposure. I tend to only go out once the sun goes down.

I live in Florida and have problems with the heat myself. Drink plenty if water start before you go. Try also gatoraid. Put on sunscreen and keep putting it on. Just because you put it on once you need it all day long. Try to go out early in am and later in pm remember our hot time from 12-5. Do not forget a hat. Keep your head protected very important.

 

                                      

I actually miss winter right now as my central air unit is not functioning properly

I have the same problem. I'm more sensitive to the heat than the sun. Part of it may be the Raynaud's or some other circulation problem. I have problems just standing in one spot anyway (autonomic dysfunction), and if it's hot, then my feet begin to turn a lovely shade of red-purplish-blue and if I don't get out of the sun and sit down quickly, I'll faint. I've had this problem my entire life. I could never survive without air-conditioning, although the cold can cause me pain too. At least I can stay conscious in the cold and pile on sweaters or heating pads.

The sun can leave me feeling a little fluish the next day.

The only thing that really causes me rashes is my halogen bedside light. I love the light. It's great for reading and has a dimmer switch, but the side of my neck by the light always looks sunburned with a slight red rash.

Good topic!
Sun=itchy, bumpy rash on chest; itchy, mottley, uneven type sunburn on other exposed areas; now use 50 sunscreen. I feel unwell, sluggish, get a headache, and sometimes achey and sick to my stomach.

Heat=especially when combined with sun always makes me feel sick...no energy, sick to my stomach, headache, sick to my stomach, no appetite, etc. Do not even whisper the word humidity. I hate it. It makes me feel worse.
I, too, cannot survive summer without A/C (yes, I am a wimp--grew up without it but now it's a necessity) but I have severe Raynauds year round so I keep gloves handy all year because the A/C brings attacks on.
The good news is that my joints are better in the heat .

Cold=ick ick ick, too! Can't get warm! Bad for the Raynauds and the joints. Warming up can take forever. There are blankets in our cars so that others don't suffocate because I need the heat on forever and they are about to have heat strokes. I wear gloves inside of mittens. I have found that the instant heat packs that are for wearing inside of gloves fit nicely inside the pocket of jeans. they help to keep the body warm.

Moderate= just right.

xoxo emmie (Goldilocks)

I'm going to be at Jacksonville Beach for the 4th of July. I'd like to come down early and stay in st augustine and go to Ripleys and maybe the ghost tour again. All our camera photos ended up not showing pictures where we aimed at. I mean like pictures of the guide ended up pictures of the sidewalk and stuff. It was creepy. We saw some orbs and felt some strange stuff. Mostly , the stories are great. It would be nice to meet you since we live sort of nearby. Maybe you could show me where to get some good aromatherapy oils and stuff. Also looking for a good endo in the area if you know one.

We could have a blast. I'd rather see the fireworks in St.Augustine, but my folks want to watch them at Jacksonville beach. I bet they are awesome in St. Augustine. I didn't get to go in the lighthouse either. I live by the Golden Isles (St. Simons and Jeckyll) and they are nice and resortlike too, with a lot of history. I have a pass to all the parks in Georgia for three people for the whole year. Ft. Frederica isn't as cool as St. Augustine, but there is some nice history there.

Yes Heat absolutely affects me ! I literally cannot be in the sun or heat for more than a few minutes or I will "flare up" with the rash,nausea,fever, flu like symptoms. I've been newly diagnosed so this is very hard to wrap my head around. Most summer days I feel like a prisoner in my own home. I used to very much enjoy being outside with my children and dog, used to enjoy gardening, yard work, etc. but can no longer enjoy or participate in any of those things if I want to feel ok. Fall is my favorite season..cool temps and hopefully cloudy days. I definately need to move to cooler cloudier climates some day. I would never wish this on anyone, but I just pray every day to get me through most days and try to smile through it all. I try to teach my family that you just have to wake up and put one foot in front of the other and keep going with a smile.