Kidney disease spilling protein question

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2158

Posted 6/27/2008 8:16 PM (GMT 0)

Hello,

Jumping over here from the UC board. I was googling and an old post came up from the lupus board about kidney disease so I thought I might ask a couple of questions, if that is ok?

I was dx'd with Minimal Change Disease after a biopsy 09/07 though recently my Nephrologist thinks it could possibly be FSGS b/c I am not responding as well as I should to the meds, which basically means an eventual kidney transplant.

My current meds are below and the pred was @ 5mg but my colitis flared up so I had to go up to 40mg a day and from 1.5 weeks ago my colitis is doing much better (thank goodness).

I am thinking of pushing to try Cellcept, the neph had mentioned it before and I wanted to see if anyone else had taken Cellcept and what your experiences were?

Did any of you not respond well to prednisone/ace inhibitors but someothing else? If so, what were your meds?

I was thinking Tekturna/Lipitor/Pred combo would work really well for me, but I need to discuss getting on Lipitor (I took it once before a few years ago and had normal ankles, so I think that would help).

I have also taken lisonopril and simvastatin prior to the Tekturna.

my proteins were 4.7 @ dx. then 3.2 then 9.6, then around the 3's went down to 2 and last one was 2.6. However, my albumin went from 2.4 to 2.8 which is good.

TIA!

AlwaysRosie

Veteran Member

Joined : Jan 2005

Posts : 8616

Posted 6/28/2008 1:17 AM (GMT 0)

Hi Beth, I don't know much about kidney disease but wanted to welcome you to the forum. There are a few knowledgeable kidney members here who will be along in a day or two to help. Some of them aren't on to often . . . so if you don't get the info you are looking for, bump your topic back up until they see it. Blessings!

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 6/28/2008 3:42 PM (GMT 0)

Beth, I can't help a lot either, but I'll bump your post up so that hopefully some others who have kidney disease can answer some of your questions. I'm sorry you are going through all of this.

curlyhair

Veteran Member

Joined : Jan 2005

Posts : 659

Posted 6/28/2008 5:27 PM (GMT 0)

Hi Beth,

I can't be of much help but wanted to say hi. I have membranous lupus nephritis and was lucky enough to go into remission quickly. The only meds I took were Lipitor and Altace(ace inhibitor). I am currently Stage 3 chronic kidney disease due to permanent damage but my kidneys are holding steady so far. Although your protein level is elevated it sounds much better than 9.6 and your albumin level is at least coming up. It took a long time for my albumin to go back to normal so be patient. Is your nephrologist planning to do another biopsy anytime in the future? I know having kidney issues is scary, especially since you can't tell how well they are functioning. Good luck and I hope changing meds works for you.

Sandy

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2158

Posted 6/30/2008 2:05 PM (GMT 0)

Thanks everyone!

Sandy, he says he might do another biopsy in Oct to check for FSGS if I don't go into remission, that will be one year on pred.

It's the not knowing that drives me banana's sometimes, though it sound like all of you are dealing with so much, I really appreciate you taking the time to respond.

I am going to contact my Primary and discuss the best way for me to proceed, I basically want second opinions for both my diseases and just want to make sure I get the best treatment possible (as well all do).

Thanks again and take care~

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