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I'm going batty - ??? Lupus

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Posted 4/7/2010 7:59 AM (GMT 0)

Saw my local GP for blood test results - ANA positive - JUST!!! Others all over the place. Some can't get results because the ANA interferes with them??? He's sending me to a rheumatologist - 4 month wait!

I've had the worlds worst headache for 5 days now - incredible pain, nausea, blurred vision, the worst "blond moments" of my life (sorry to the Blondie's, we Aussies use the term a lot & mean no offense), SOooo clumsy & joints are killing me. When I went into the Dr's I had a "sun-kissed" appearance on my cheeks - weird because I haven't been outside. Later that night I went into the bathroom & saw a stranger looking back - with red welts on both cheeks not quite meeting on the bridge of my nose. Some fashion statement lol.

I feel so exhausted & now starting to get teary - GREAT that's all I need!

Sorry to be whinging but I live on my own & I'm not coping overly well at the moment.

I have to wait another 4 months to find out what is wrong with me. Is it Lupus or not? If not then what the hell is wrong with me? shakehead  

PS   ANA is 1:80 (normal is 1:40 according to lab)

       speckled pattern

       ESR is 29 (normal is 1-15 according to lab)

       ALP is 165 (normal is 30-120 according to lab)

       all just a bit over the normal range

Post Edited (tibby2) : 4/7/2010 2:31:21 AM (GMT-6)

Posted 4/7/2010 2:43 PM (GMT 0)
I'm so sorry, Tibby. And how awful that you have to wait four months to get in to see a rheumy. Can your PCP not give you something to ease the pain? What you have sure could be lupus and if so, the earlier you receive treatment the better. I hope the next four months fly by. Hang around here and we'll hold your hand till then. (And after too!)

(((Hugs)))

Pat
Posted 4/8/2010 9:23 AM (GMT 0)
me and you are in the same boat, i just found out less than 2 weeks ago, that i too have lupus. i have had the red rash face for many yrs. around 7 to be exact. im fair skinned, and it stays at a light pink  but, very noticable.. then when i have hot flashes or out in the sun, im bright red. what made me take a stand and raise some H3!! was.....i was going in for blood work, i am a diabetic. i felt bad for a long long time..years.. being told oh its your sugars.......not..........i started out weighing 190 at 5'2 lbs./  i went on a strick diet lost down to 165, and from a size 20 jeans to a 14 woo hoo me...lol anyways i still hurt and my joint pain and sleepless nights got the best of be. and my memory loss.... yes, memory loss. i can remember back  in my childhood, but i cant remember last week. if i talk to a friend on the phone and she tells me to call her back later on that day... you can forget it. b/c ive forgotten it. i have been doing alot of reading this is called ''lupus fog''.. so no gf you are not going crazy lol. but i thought i was. im still learning and im posting alot, they will get sick of seeing me here. for the pain he gave me mobec...generic form is meloxicam, i can get this drug at walmart for 4 bucks! i just hope it works. my first rheumy doc, is in may. i cant believe you have to wait 4 long months... good luck to you and keep posting, im new to all this maybe we can lean on each other lol..........
Posted 4/8/2010 10:47 AM (GMT 0)

Thanks guys

Unlike you bittersweet2u2 - my GP hasn't said what I have. He told me the tests could be indicative of Lupus or some other problem. Here in Australia most doctors don't like to speculate, nor "label" people ..... they think it's counter-productive, hence I have to wait to see the rheumatologist to get an answer! 

I also take mobic (4yr), plus: ibuprofen, imigran (headaches - not working), somac (stomach), digesic (pain), over the counter paracetamol, thyroxine, and dyprozone ointment for rashes.
If I go out my friends always come to me if they get a headache etc - they call me the walking drug store  lol. I only ever give paracetamol.

OH JOY!!!! I've just looked down and I look like I have red tinged 3/4 length socks on!!!  On closer inspection it looks like minute broken blood vessels - what is this???

Posted 4/12/2010 1:13 PM (GMT 0)
awww tibby i know what your feeling.  been there!  know you are not alone. and it sounds like you have a good dr.  keep the faith..your not doing this alone!wink
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