HealingWell
Search Close Search
☰

What exactly is a High Sed. rate?

Support Forums
>
Lupus
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/25/2009 2:01 PM (GMT 0)
I seem to have had a high sed rate - forever. Three months ago it was 90 - last week it was 60. My doctor seems unconcerned and only indicates "there are a lot of causes for that." I feel crummy but don't know what specifically to do.
Posted 2/25/2009 3:00 PM (GMT 0)
I am sorry to hear that. My son has been feeling this way as well. They are going in many different directions with this, its very nerve racking watching him go through this. One minute he is fine and playing, and the next thing you know he is down and out with a high fever and headache.
Posted 1/22/2010 8:15 PM (GMT 0)

turn My son has a sed rate of 100? What does this mean? I need help!!!!! He is 19 and his legs hurt really bad.

Posted 1/23/2010 2:50 AM (GMT 0)
we just found out yesterday that my who is 19 has a sed rate of 100. He has complained of his legs hurting. Does anyone have anyideas what this could be?
Posted 2/25/2010 10:17 PM (GMT 0)
what kind of pain is it? sharp, skin, muscles or joints or both? is anything visible on the skin? high sed rates SUCK...mines 130 right now and pain comes and goes but leg pain varies depending on the cause...mine is caused by cutaneous vasculitis associated with auto immune diseases

i dont know if this is your answer but it could be one possibility...
Posted 2/26/2010 7:58 PM (GMT 0)
Our hemo doc said that his bonemarrow has scar tissue and it could be pushing on other tissue. Does this sound right? His legs hurt all the time. We found out over the last summer he has a genetic disorder called Alps. The antibodies that kill off viruses then go away his arent going away. He has been sick almost all winter. Been in the hospialt with dehydration, virual infection. and low red blood counts. He is now on Ibproferon 2xs a day for the pain. He doesn't have any visual swelling or bumps or anything else on his legs. He has a pet scan, ct scan, and a bunch of blood test yearly. We are getting ready to start med for the Apls, but he has to be well before he can start anything. It has been a long winter.  Thanks Tori
Posted 2/26/2010 11:12 PM (GMT 0)
that sounds really very painful and i am sorry he has to go through that...i hope the medication brings him relief...for any pain i have...no matter what it is linked to i find that a soak in warm water and epsom salts helps for temporary relief...


i hope get gets well soon

nish
Posted 5/25/2010 2:43 AM (GMT 0)
I know that this is the Lupus forum but I have HUGE concerns for my 7 year old daughter who has a VERY rare genetic disorder 2Q37 Deletion and 6Q Duplication. Over the last month she has had elevated SED rates. She was getting testing for her Endocrinologist and her SED rate at that time was 42 on a 0-20 scale....then she went to the ER a week later for extreme pain and sensitivity in her left wrist and a low grade fever....her SED rate at that time was 66 on a 1-10 scale....Her wrist has no break, so they were thinking septic arthritis....But they swabbed her throat and she had strep with no symptoms....The ortho put a cast on her wrist "just in case"....Then a week later she still has a low grade fever....tested her for strep and it's negative....give her a chest xray....Now she has pneumonia! They admitted her, and this time her SED rate is 45 on a 1-10 scale. She had pneumonia back in January as well though she did have symptoms unlike this time. I'm just so confused. Something is wrong for her to have this many invasive infections in such a short time. We did test her for HIV since we lived with my father for two months before he died but that is negative (which is AWESOME!). But I'm wondering if any of you have a suggestion?

Thanks,
Mayda
Posted 5/26/2010 5:00 AM (GMT 0)
Hi Mayda,
Welcome to the forum. I'm sorry to hear your daughter is so sick...she is so young. You mentioned a doctor thought she may have septic arthritis. Was she referred to a rheumatologist or any other doctor for further testing or evaluation? When she was getting testing for the Endoctrinologist were there any other abnormal labs other than the sedrate?

I know I am asking questions with no suggestions. I'm sorry. Maybe someone else will come along soon with more information. You may want to start a new topic in case this one is over-looked being in a old post.

I hope you find the answers soon and your daughter feels better. Take care and keep us updated. You and your daughter will be in my prayers.

Babs
Posted 5/27/2010 5:53 PM (GMT 0)
Does anyone know if taking Naproxen 500 mg can cause your sed rate to elevate?
Posted 5/27/2010 6:18 PM (GMT 0)
The SED Rate is used to: "Evaluate the nonspecific activity of infections, inflammatory states, autoimmune disorders, and plasma cell dyscrasias."

IE, SED rate indicates the level of infection or inflammation.

Naproxen is in a group of drugs called nonsteroidal anti-inflammatory drugs (NSAIDs). It works by reducing hormones that cause inflammation and pain in the body. Naproxen is used to treat pain or inflammation caused by conditions such as arthritis, ankylosing spondylitis, tendinitis, bursitis, gout, or menstrual cramps.

IE, Naproxen reduces inflammation.

Expected results of Naproxen on SED rate would therefore be to LOWER the SED rate.

If your SED rate is elevating, my guess would be that it is not the Naproxen causing it. However, we are not medical professionals, so talking with your doctor is always the recommended course of action.

Cheers,
Posted 5/28/2010 10:14 PM (GMT 0)
Hi,

I have a SED rate of 65. I had biopsy surgery done on my right clavicle and treated for osteomylitis. I am not sure if i will continue to have high sed rate or my osteomylitis is resurfacing again. I am seeing my doctor next week, but a bit worried what i will find out.
Posted 8/1/2010 1:42 AM (GMT 0)
This is horrible! It seems like none of the doctors know for sure what causes high sed rates. I am sure it must relate to a number of illnesses. They just have to define which one. All I can tell them is that my sed rate is 57. I am in severe pain. My hands, toes, feet and ankles are swollen. My left knee is killing me. I have a hard lump on my right chins. Mycreatine numbers have risen. I have had severe dry eye syndrome for 2 years. All of this must mean something.


I am just so sorry for everyone's pain. It is great to have people to talk to that are dealing with the same issue. Thank You!
Posted 10/20/2010 6:49 PM (GMT 0)
Hello,

I'm new to this forum. I have been having back issues and some pain in my right foot now for over 2 years. The back issues have been pretty easy to figure out. Starting in March my white blood cell count was high and continued to get higher over the last months. This pain in my foot started with just swelling and pain all over. Now in the last month is has localized its self. I know EXACTLY where it hurts. At first they thought is was a mortons naroma, from where the location was at. Well the pain has only gotten worse and can not even wear shoes. They have sent me to so many specialist and MRI and x-rays. Now all of a sudden my white blood cell count has leveled its self out and my Sedimentation Rate on a scale of 0-20, first test was 40. Then 2 days later up to 43. My doctor seems to think all this is casued from being depressed and I'm focausing on my aches and pains in my body too much. I went from being a single mom of 3 and working and enjoying life to not even able to keep up with my family and home. I know that this is not all in my head. I saw a podiatrist and he is ordering me a bone scan. But it is crazy how I feel so horrible and nothing seems to be wrong. Is 43 high? Anyone have any ideas? So nice to see that other people have a struggle with an issue of high Sedimentation Rate. Not happy that anyone is ill, just nice to see that there are people who are having similar issues.

Posted 10/20/2010 7:02 PM (GMT 0)
Hi Ray, sorry you are having so much problem. I get so mad when doctors blame everything on depression instead of a honest I don't know. Anyway your sed rate is close to twice what it should be. 28 for women is a high normal. look up "blood test sed rate" and it will explain it all. or I will check it out and add a link hang on a min.  http://www.mayoclinic.com/health/sed-rate/MY00343. there ya go. You might start a link on the forum to intro duce yourself. People tend to get lost when they just add their first post to one that has been around along time. Welcome to the group!

carol

Posted 11/19/2010 8:50 PM (GMT 0)
I found all of the post interesting.  I have had chrons disease for over 10 years and have never had a sed rate in the normal ranges.this year its kind of close 35  My ds was diagnosed with JRA and his sed rate is normal in spite of multiple joints affected go figure.

Posted 1/3/2011 4:01 PM (GMT 0)
My sed rate is high. Seeing PCP tomorrow. He'll want me to see a Rheumy and get a biopsy. Can I just visit the Rheumy and not get a biopsy. I've heard it can be painful. I'm a tennis player and I have Dermatemyositis. My muscle weakness has gotten much better. So what are we looking for? He upped my prednisone to 40 mg.
Posted 2/16/2011 10:39 PM (GMT 0)
Hi there guys. I could list a big long list of things that I "think" are wrong with me. All of which that my doctor has said that its most likely to be down to my anxiety problem that I have and that I know I have about my health.
I had the 1st ESR test done about 4-5 months ago because i was getting pain in my knees. I had an x ray and both knees were fine. They said it was slightly raised and ma doc said it's probably inflammation and nothing was done. I had gallstones at the time and was due an op to remove them. Second time i had them done was when i had my pre op check to have out my gallstones a week later, which i had done. Again slightly raised. I went to talk to my doctor about some problems I've been having and he said to have another blood test. This time my doctor called to say she wasn't to see me this friday, the receptionist said that my ESR was 46 now it is 52. So its rising! I get REALLY REALLY worried about stuff like this. I am 24 and I am obese. I suffered from high blood pressure but that has seemed to of sorted its self out. Esp after having my son. I also get a lot of throat infections, and I had laryngitis for the first time round Early November. I've looked it up on the net and all it keeps saying is CANCER CANCER, KIDNEY FAILURE, LIVER DECEASE etc etc Not very helpful considering it sends me into a bloody TERRIBLE anxiety depresso mode and i cant function.
Can anyone please shred any light on to it, or any advise would be great.
Posted 8/4/2011 4:18 PM (GMT 0)
Hi everyone!   I have had similar feeling that you have listed.  Sharp pain in leg, fatigue, not feeling like myself.  The whole time my sed rate was getting higher and higher and the 13 physician's could not figure it out. (Last one was my endo specialist) I have tried everything I could think of to figure this out.  But..... all of you (ok, most of you) said something to really make me think.  I did not start feeling like this until I had my last child.... my son (first three were girls).  I had a tubal ligation and three months later I had all these issues.  I don’t know if it has anything to do with it, but has anyone had their symptoms after having their children or ligation procedure?   I take a lot of deep breaths and hope one day someone can truly explain what is going on!!!!   Take care,     KJ
Posted Today 4:05 PM (GMT 0)
I have a question, My sed rate has been at 130 for almost 2 months, doctors can't figure out what is wrong. I am going to see and endocrininolgist(probably spelled wrong) on Dec 12, 2011,  I have had several health problems like skin is sore to touch, loss of hair on my legs and armpits, swelling and blaoting of my body, (use to weight 140 now weigh 180) sore joints, tired all the time, really bad stretch marks on hips and behind my knees, and loss of apetite in the morning. If anyone can give me any understanding as to what could be going on I would appreciate it.

 

I read about like Cushing's disease and am praying that I don't have that and if I do, that they catch it early and am able to get rid of it, So many questions and no one has offered any answers.

Posted 7/25/2012 3:42 AM (GMT 0)
Hi

I am a total newbie to this site but your stories drew me here, I know this is a lupus forum but you all sound like you have alot of the systems I have and I can really feel for all of you even though I do not have lupus. I am 47 year old women and have had high ESR readings for the last 15 years usually around the 120 mark, I started to feel unwell after I had my last child, we had problems after she was born and all her blood was removed and she was given mine, so this is now a worry for me. By the time I was 35 yrs old I was that tied I had trouble getting myself out of bed to take the kids to school and pick them up and on the way and from school I would have to stop the car to vomit. I went to the Dr and she sent me for alot of tests including spinal taps which all come back clear and a bone marrow test and of course the hospital lost these results and would not do them again, I had been poked and proded and taken samples of all sorts of bits and pieces of me with still the same answer 'they don't know what it is'.

My systems are a whole range that can last anywhere between 4 wks and 3 mths but the fatigue sits in the background always just at a different level and I get hit with it at least 3 times a year, I thought I was going mad when it first started. Hot fevers that made me sweat that much we had to change the sheets at night at least a couple of time and cold fevers that did the same, fatique, vomiting, could not eat one day but be starving another day, feel like sharp needle being pushed through my skin and bone and then it would stop after about 30 second but start somewhere else until the cycle had run it course, no one can touch me at times or it feels like a BIG punch and leaves a bruise. I also bruise for no reason and sometime my thinking is not clear but I don't know if that is from pain or what.

When I was 42 yrs old I met a new man, he was horrified with what was going on and I let him talk me into going back to the Dr as everything could be fast tracked as I worked at a hospital (I lived in Brisbane by this time). So I went through most of the same test as before except the bonemarrow and was sent from department to department until they finally gave up.

I now just live with this illness as I believe I have the same as my mother died from a few years ago, I watched her go through the same process, Dr after Dr with no answers until just before she died. She died of leukemia that there was no cure for and they can not find the leukemia until not long before you die. My elder sister also has the same systems as me and my younger sister is just starting to get them. I could be wrong with my thinking so if anyone has any ideas about what my sisters and I have please let me know

Cheers

sherylberrell

Posted 10/27/2013 12:01 PM (GMT 0)
I've had Myasthenia Gravis for over 20 years and every time I get a blood test, I'm asked if Lupus has ever been mentioned. The tests results must be similar. Once I tell them that I have MG (Myasthenia Gravis) they understand and say that must be why my SED test is elevated. My SED test normally runs from 40 to 60.
✚ New Topic ✚ Reply
12