New Treatment

Hey Earnest. If you click on my user name to the left of the box, you will find my email address. I have some information I would like to pass along if you are interested. Please title the email along the lines of Benlysta or healing well, So i know it is not spam!!!!

Thanks aimsgirl and bigsanfer for your response.

I will be on my 3rd treatment next week. My normal BP ranges 90-100/60-70. When I go for the treatment my BP goes down. On the first treatment they had to give me IV saline before the infusion just to bring it back up. I also noticed I feel tired during treatment and feel less energetic for few days after. Also my lupus seemed to have flared up. Had dry eyes, arthritic hands, swelling of the lips, and fair appetite. My maintenance dose of prednisone is 7 mg. I sure hope eventually it will turn around for me and minimize the flare ups. I have to take extra care as this lowers immunity.

Thank you both for sharing.

I'm happy for you AZ. I would suggest get someone to give you a ride on your first treatment because I felt weak and tired after infusion.
I just learned there are other people who also had the same problem. With me the tiredness lingered for few days. I was also a little dizzy afterwards.
My low BP might have contributed. Good luck! If you don't mind I would like to give you additional information and will send to your email. I will put the
subject Benlysta on it.