I don't know what to think...

I've been feeling pretty cruddy for the last few weeks. I went to my regular doctor for exhaustion and muscle weakness back in late July. The weakness alarmed him and he immediately called rheumy.  I saw her 10 days later, and she had me do usual bloodwork.  Regular dr. also set up a sleep study, but the initial appointment for that isn't until October. If the blood work is ok, I don't go back to the rheumy until after the sleep study (she'd like to see results), although my vitamin d is again very low, so they are calling in a prescription.

Since those appts., the exhaustion hasn't changed. I keep getting sores in my mouth. The exhaustion hits about an hour after I wake up, and by afternoon it's hell - like I get hit by the flu, right down to the sore throat. If I could sit and cry, I would, but it would just further exhaust me.  Then, at bedtime, sleep doesn't come easily.  Starting on Thurs, my ribs hurt for no reason. Just the bottom rib, both sides, and the worst time seems to be when I crawl into bed. 

Rash? Yep. It's like a sunburn, but only  for a few hours a day, usually in the morning.   Today I took a picture, if only to prove to myself it was there, and to have it to show the rheumy.

I'm not sure anymore if any of this means anything or if I'm slowly going crazy.  I don't WANT or HAVE TIME for an immune disorder, or RA or fibro and I'm sure you all know what I mean.  Slowly. Going. Insane.  At times I wonder if I could be a closet hypochondriac.... I'm beginning to doubt what I feel... but  then my muscles don't work right (I type a lot at my job and my arms/hands don't cooperate) and it scares me... yet no one seems that worried.  How long should I wait before I request a referral to an neurologist?

Thanks for letting me get it out here, I just need to not feel so alone today. Tomorrow is Monday, and I'm not looking forward to another workweek.

I hope you all had a happy and calm weekend.

 

Hi!

You AREN'T going crazy, you aren't. And it is NOT in your imagination. I could have written your post, and I had to give up my job for those very reasons. Nights feel a week long, and it is so hard, so frustrating, so demeaning, to complain about subjective symptoms when doctors and nurses are too often focused on facts, measurements, abnormal lab test results, and then quantify dismissively, like... weak positive, or low normal or worse yet...... since we don't look sick...........let's wait 3 months and repeat the blood tests!!!! And I am blessed to have 3 pretty good drs. It's enough to make me CRAZY on top of feeling so sick, so darn darn sick. Please don't doubt yourself and don't wait to see a neuro or your rheumy. I take lots of B12 and D and they do help my symptoms quite abit. Hang tough and don't hesitate to be an advocate for yourself.

hugs,

suetoo