I finally got a Rheumatologist appt.....on 10/7

Well after getting my blood test through rolled eyes and finding out my ANA was 1:320 my symptoms matched my blood work!!!!! and I am getting some attention to my symptoms.  I cannot wait to see the rheumatologist, someone who doesn't know me and hopefully will be a good one.  I am the person who's PCP used to be my best friend as well and a co worker who for some reason she has turned against me when I became very ill after a surgery that went very badly and I wasn't able to return to work.    She became very angry at me for some reason so everytime I saw her as my doctor she seemed so angry almost venomous.  My symptoms though are such a dry mouth that I cannot describe it.  I have to stop speaking all the time to wet my mouth.  It is a pain in the night because it gets so dry I wake up and have to scramble for liquid.  It isn't thirst don't mistake it for that it is mouth dryness.  My eyes are so dry and goopy (hows that for thechnical LOL)  I thought I Sjorgens and that is why I had her do the ANA she roller her eyes but that is when the blood work came back that way.  In the mean time while this whole mouth thing was going on my right hand began to stiffen and swell, but it kept getting worse and worse and now it is to the point I can't stand it.  I can't wear any jewelry it hurts so bad to try and get a ring over my joints it makes me wince but now my swelling is so bad I just can't.  Now, I can't believe it , it is starting in the left hand, just my last two fingers right now but it's starting. 

Here is my question though has anyone felt this, I was driving the other day and on my feel like in my toe row and the front of my foot it felt like it had become electrical just burning pain.....then the pain became to throb up all into my legs.  It took my breath away.  I almost had to pull over.  It felt like a tooth ache in my legs.  I couldn't rub them enough.  If took about an hour to make it stop but wow it was awful.  After my surgery and the protein malnutrition they said that I had neuropathy but I don't know I never felt anything like this before.

t

Good luck at your appt. Please make a post about how it went.

I hope you find a doctor that listens. I have my first rheumy appt on Friday as well and received the paperwork confirming it today and it says the initial appt will be 30-45 mins minimum so hope that means someone can get to bottom of this thing, hope your appt gives you the same amount of time to explain what has been happening. Good luck.

Thanks everyone, I guess I am bitter as well as sick. I lost so much, I mean I know you all have lost so much as well, but my doctor was my best friend and she just stopped being my best friend and I don't know why. I lost my job where we both worked and we talked at least 3 or more hours a day we talked allllllllll weekend long we were talking all the time. We knew everything about each other. The second I got sick she disappeared out of my life and I just don't get it. I also lost everything else. My job which was my idenity I was good it was what I did and what I was good at. I was looked up to there and was the best and I don't have that anymore. I have lost so much money. I am MAD because a doctor caused a HUGE portion of this because he stopped this surgery in February and I wasn't this sick in February and I wouldnt have had this back then. I can't sue him becuase I didn't die. The legal system wasn't there to protect me. Evidentally the system is to protect the doctor and he said they would crucify me even though according to him it was clearly neglegence looking at my medical records, he was so sorry it happened to me but these types of suits are expensive and doctors don't go against doctors and he doesn't want to see me go through more pain. He did say that I could file a complain with the medical association. I have to somehow get over the bitterness because being this sick and going bald is enough to deal with.
Thanks for all your support I am glad I found this site and I will seriously try to quit whining I really will, if you knew me you would find it so out of character for me. I am such a "cup half full" type of gal. I am such an optimist but this situation has taken my joy and I simply must get it back.