Positive ANA, weird skin biopsy, periods of severe illness, and still don't know!

I am new here and have been reading through posts in many areas. For years I have had health problems. My problems began with back and joint pain as a young teen. But at this same time, I was being poisoned with bleach by a caregiver. I honestly have felt that my issues were from chemical poisoning. And maybe they are-but gosh I am so sick of being sick and never knowing what is around the corner. Thing is, I have too much going on to BE sick, as I am sure all of you can agree with. I am a mom, a wife, a homemaker, and a horse trainer.

Here are some of my symptoms:
Arthritis(starting by the age of 21)
Gastric problems(for ten or more years)
Swelling in extremities
Cold in extremities(for the last 5 years)
Muscle spasms, nerve pain, cramping, often severe. (about 10 years)
Often dehabilitating fatigue.(10 years or more)
Rashes that come and go.(for about 10 years)
Weird responses to insect bites, too much sun, stress and wounds-rashes always pop up with all of them, and infections and bug bites don't heal well. (the last 5 years or so)
I get cold and flu worse than most.(since I was a kid)
Joint pain(since I was a kid)
Stomach pain(since I was a kid)
Sweet's syndrome(2006)
Bleeding under the skin in my lower legs (2006)
The list goes on

Here is what tests I have had that have at one point or another shown SOMETHING.
Skin biopsy: neutraphilic dermatosis.
Elevated BUN/Creatinine
Many times of very high sed rates, always with pos ANA
Positive for Epstein Barr
Positive for Rheumatoid Factor
Duodenal biopsy indicative of Celiac Disease
Anemia-sometimes severe.
Antiphospholipid Antibodies
Occasional positive on Lupus anticoagulant

Right now, all I have is an ANA of 1:640-well the Doc said it was higher than? Don't know the pattern but in the past it was speckled. And now my heart is always flip-flopping. They did a quick EKG and said I was fine. Sometimes I can't catch my breath. I WAS on Wellbutrin for anxiety, they said it would help, but it got worse, so now I am on Effexor, no change in my weird heart flopping.
It's depressing.

I have had some doctors blow me off. In fact, I was blown off and told to lose weight by one rheum-even though I had been on 120mg of pred for months for severe rashes and what looked like vasculitis. So that's what I tried to do. I went off the pred, tried to lose weight, avoided doctors for more than a year, and almost bled to death from my intestines by the culmination of symptoms I tried to hide. There have been times when the swelling and pain in my legs has been so bad that I simply couldn't walk. It feels like my veins have acid in them, and as I stand up, it it burns it's way down to my feet.

Also, my family history is this-Type 1 diabetes-even my six year old son now has it, but I do not. He also has celiac disease, but my blood tests for that are negative. Also, my father has gout. Can anyone tell me what the heck is wrong with me? I conceal things now out of fear-I just don't want to see the words "psychosomatic" and "abusive childhood" on my chart anymore.

But I also want to live to see my children grow up, and I am losing hope.

Please, if anyone can shed some light, I would be very grateful.

Thanks so much for the support-it helps to know I can talk with people who have struggled, people who understand. That is what brought me here-it can be discouraging to be ignored by doctors. I am glad you found one that could help you out! I hope you are doing much better (((Kellysfirst))))

If the ANA is what I think, mine today was 1.8. The anti- dna double stranded test came back as a 13
(a high marker for this test is a 9). Now they want to send me to a rhummie. I am definitely NOT doing the
major drug route as it will do more damage than good. I'm going to try to get to my favorite herbal shop and
see what my "connection" recommends. He hasn't done me wrong yet.
I also have arthritis, fibro, sciatica, scoliosis, both knees are trash, degenerative disc disease, bone spurs all
over my body, hips are going, situs inversus (upside down heart), most female surgeries known to man,
tons of lipoma and a great grocery list of stuff wrong. Personally, I think that attitude makes it easier to live with,
I know that I'll slowly go downhill but I'm going out fighting.
Nana Monster

Dang good movie. I do my 40 hours a week in a 200 bed nursing home kitchen dishroom.
I unload and rack dishes and check trays. Very physical work...sometimes I go home and get
my cup of coffee and just veg. Up until the knee surgeries I was push mowing 2 acres. Now it
takes me a lot longer to do it. For fun I read, knit, crochet or spend time with the grandkids.
I have 5 that live within 10 miles of me. I'm teaching 3 how to knit and crochet and 1 to drive a
standard. She does real good with it and goes for her drivers test next year.

I'm trying to get my stuff organized as I made hats and scarf for the homeless this year (for
Rescue Mission) and some crochet kids blankets for the Linus Project. I save soda cans and this
is my 17th year donating.

Do you live near a teaching hospital or university? I don't understand with your symptoms and lab tests why any decent doctor would blow you off. Are you gluten free as well? Celiac can be really hard on your system if you aren't gluten free. If you have auto immune disease like lupus, the prednisone should help. I hope you find some relief soon. Good luck.