My Hair is STILL falling out!!!!!!!!

WHAT IN THE HEC!!!!!!!!!!!!!!!!!!!!!!!!  Really.....Honestly......why won't it stop.  I don't want to be bald and I only wish I was exaggerating I am going to be bald very very soon.  I try and not touch it as much as possible.  Thank goodness it is dry from the thyroid disease or Lupus or whatever that way i don't have to wash it that much.  I have to take a valium to do my hair, honestly.  I wish I was kidding on that but I just am not.  I had that super bad sugery in June that because of the complications almost killed me and I have been told I probably always had this Lupus underlying because I have had symptoms of it pretty much forever and a couple times had a positive ANA but nothing else.  When I almost died from that surg and its complications I just never recovered and just kept getting sicker and the doctors kept getting mad at me (for some stupid reason???)  but I finally asked for an ANA test because of my mouth problem actually I had heard about Sjorgens on the radio or something my doctor roller her eyes but ran the test and it came back positive and the game has been on since then.  I have fired her as my doctor as there is so so so much more to that story but my doctor now said I am lucky to be alive at all after that ordeal he can't believe I lived as sick as I was.  He is not convinced i don't have the autoimmune hepatitis and won't be convinced unless I have a liver biopsy and last monday I turned a little bit yellow, not my eyes so much but my skin definitely.  I was on Prednisone for three weeks and been off a week and am DEFINITELY in a flare again....full blown!!!!  But MY HAIR when will it stop falling out....is it a side effect of Lupus this bad.....to go bald bad????????  I mean I am going to be bald soon!

That's gelatin/ biotein capsules. I took it for awhile to help my thin nails and achy joints. It does help thicken nails, since your hair is made of the same stuff as nails it couldn't hurt to try it.

Try just gelatin capsules instead. They are harmless and help grow nails, too.

My hair started falling out when the other Lupus symptoms started and read on the Crohn's forum that folic acid is good to stop hair loss so started taking that and it has slowed down. This will sound odd as all hair falls out but never had hair come out before. My hair is very short and have it cut every 5 weeks but even running my hands through hair wet would never have any on my hands but when it started falling out it would be on my hands, pillow, in the plughole, shower. My hair is naturally thin and not a lot anyway but you could definately see my scalp more.

Try some normal folic acid tablets, they seem to have slowed it down for me. Like I said a lot of people on the Crohn's forum use them to counteract the meds used that can cause hair loss.

Thanks you all. I am going to go to the hairdresser next week I think....yup I have a valium I just checked hahahahahaha this is just super distressing to me along with all the other things going along with it. I try to NOT touch my hair at all I wish I was exagerrating but I just am not, I pretty much leave it the hec alone! I see my rheumy on Jan 3rd, the new Vascular doc about all this HORRIFIC swelling still going on since the "surgery from hell" so now with more compitent people on the job the pieces will start to fit together a little better.

I really appreciate all of you so much, I truly do! For those of you that celebrate Christmas as such MERRY CHRISTMAS, to those of you who don't please enjoy the time the world has allowed you for a little rest and relaxation.

Thanks again everyone!

Precious Flower - how are you feeling since your diagnosis? The hair thing.....ugghhhhh!!! I think the bottom line is.....if the disease isn't causing it, the meds are most likely the cause....or it can be both.

I hope that you are on a med regimen that is helping you since your diagnosis. God Bless.

Karen

I've been doing a little better but i have my moments like medicine problems. My hair starting to grow back a little but i am watching to make sure that the plaquinal does not throw my blood pressure up again and plus my prednisone is now on a lower dosage. I only take 200mg of plaquinal because the high dosages cause severe headache for me. I am ajusting to this decease after a life threating attack to my body in August. but i ended up learning alot in a class called "Living Healthy with Chronic Conditions". It help me cope with all this tough stuff at the beginning. I would recommend that class to anyone that struggles with a chronic illness.

I recently went to my first support group for Lupus. It's amazing how differently this disease affects everyone in regards to it's severity. I think i am having a hard time accepting that I have this illness. I don't want to sound negative, but everything in my life has changed since my diagnosis. I feel very limited. I know it could be worse, but I think we all have our own individual journey and experience. I don't think it's acceptable to be in chronic pain for the remainder of my life....or anyone else for that matter. Is there such a think as remission from this disease? I hear of so many people that have flares from time to time, but it seems like a lot of people do well. Anyone out there ever experience a remission? if so, for how long?

I just stopped taking Leflunomide because of diarrhea and flu like symptoms. I am on Prednisone and Methotrexate until I see my doc next week. The Prednisone seems to help.

I hope that everyone is having a safe and happy holiday......i think you are all wonderful:)

Karen