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Hospitalization and Lupus Flare

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Posted 1/30/2013 5:33 PM (GMT 0)
Well, i guess it's the start of my Lupus life. Pain and fatigue has been so bad that dr put me in the hospital yesterday. She called it a Lupus flare.

I am on IV fluids also with an IV steroid called Solumedrol,  Fentanyl pain patch and other bloodwork shows right on the borderline of having to possibly having a blood transfusion but won't know that until tomorrow.

I am feeling better and right now that's all that matters.

Posted 1/30/2013 11:13 PM (GMT 0)
Wow!
Hang in there and I hope you get dismissed soon.
Posted 2/1/2013 2:23 AM (GMT 0)
I am going to ditto what Joy said. "Hang in there!!!" I am glad that you arae feeling better right now.

Laura
Posted 2/1/2013 3:31 AM (GMT 0)
I hope that you can get straightened out! Get well soon!!!
Posted 2/2/2013 3:53 AM (GMT 0)
Well, been in here since Tuesday, been through the wringer and last night was a doozy. Spent most of the day yesterday prepping for a Endoscopy and Colonosopy for this morning. Ugghh, my tummy still not feeling good.

The results are: Drum roll please. Erosive Gastritis and Internal Hemrroids. Also after all this mess my Hemoglobin dropped to an 8, which according to my dr is the criteria point level for a blood transfusion. So, blood transfusion now on top of all this steroid stuff and I hope this takes my headache away.

Lupus flare and Connective Tissue disease flare supposedly, finally under control.

 

Posted 2/2/2013 4:24 PM (GMT 0)
Well, Shoot a Monkey!
I hope you can get feeling better soon and they can fix you up right.
Hang in there.
Posted 2/3/2013 3:04 AM (GMT 0)
Hang tough! I have had so many tranfusions, I can't even begin to count them now. It should help with your headache and give you more energy!! Has the solumedrol helped with the pain?
Posted 2/3/2013 3:09 AM (GMT 0)
What an awful welcome to our forum txplowgirl. IV solumedrol does work wonders on flares. Too bad it doesn't increase your hemoglobin. I had a transfusion this year and unfortunately one of our lupies has regular transfusions. I've had many endoscopies and colonoscopies. One nurse insisted on giving me the entire bag of enema fluid to prepare for a colonoscopy even though I insisted I could not hold another teaspoon. Well, her mistake. When I "exploded" it left her covered in poo poo to say it delicately.

I hate being in the hospital and I very sincerely hope you feel better and get discharged soon. Love, Butterflake

Posted 2/3/2013 4:46 AM (GMT 0)
Sorry to hear you're having such a tough time right now. Your transfusion should help you feel a lot better.

I like Amy, have had more blood transfusions than I can count. My hubby always points out when I'm in need of blood, I can barely breath, am pale and in general look like death warmed over. Then the next day after getting my blood, I've got rose colore cheeks, and am able to walk down the hallway.

Hopefully,your steroids will kick in soon and you'll be on your way home soon. Hang in there, wishing you the best.

Hugs,
Barbara
Posted 2/3/2013 7:13 AM (GMT 0)
Thanks everyone, I'm home now, with a new prescription for Zantac for my Gastritis and a new prescription for The Fentanyl pain patch for my pain. Blood trnsfusion was a breeze, wasn't at all like I thought it would be.
I am still tired but I don't hurt near as much. Still fatigued but hopefully that will right itself in a day or 2 now.

Now for a question. The only meds I am on now are. The Fentanyl patch, the Zantac, My generic Ambien to help me sleep through the night, 7.5 mg Lortab for breakthrough pain and 800 mgs of Ibuprophin.

I don't see her for another month. Shouldn't I be on some kind of steroid or something to that effect?
Posted 2/4/2013 3:46 AM (GMT 0)
Usually, one of the first medications given is plaquenil, it can take up to 6 months before feeling its full effect. Your IV solumedrol should help you.

Most Rheumy's like to use steroids as little as possible. Steroids are a HUGE double edge sword. I've been taking steroids everyday for almost 12 years now. Yes, they help my flares, but I have NEVER been below 10mg of prednisone, and at times I've been as high as 100mg daily. Right now I've been on 25mgs daily since June 2012.

The problem is I have MOST of the BAD side effects of steroids. I have the bones of an 80 year old and I'm not even 48 yet. If they can't keep your flares under control, they may start you on an immuno suppressive drug, like imuran, cell cept, methotrexate. Once they get your flares under control you may find that your lupus will become quiet and possibly for sometime.

All lupus patients are different and vary from mild to severe. Here's hoping yours will be mild and you start feeling better soon. If you start to feel worse or see NO improvement give your Rheumy a call and try to see them sooner.

Hugs,
Barbara
Posted 2/4/2013 4:10 AM (GMT 0)
Thanks Barb, that was a real help. I guess I won't start worrying abt more meds unless I need them then.
Posted 2/27/2013 7:36 AM (GMT 0)
Well, I I guess my question was answered. Oops, sorry....Iam Gail/Angel312 I think...lol. I am new here so plz bear w/me as I get used to ur site. Anyway, I was going to ask if the doc that admitted you was ur Rheumy. I also wanted to say that I haven't had a transfusion...related to my Lupus, so I have something to be thankful for. It sounds like ur doing better so I wish u the best and don't forget to listen to ur body and rest. Do u feel exhausted fr the transfusion? I guess I was a bit surprised that u weren't placed on any immunos, but like the fello Lupie sd( so sorry, I forgot her name)everyone is different and I am sure that if ur confident w/ ur doc then u will get the appropriate tx. Feel better...
Gail
Posted 2/27/2013 7:07 PM (GMT 0)
Welcome, Gail.
Make sure to post an introductory thread. Just use "post new topic" button and type away. :)
Posted 3/6/2013 4:01 PM (GMT 0)
Ive had 2 flares int he last 3 days...joint pain, muscle pain, pain upon walking, you name it! I havent been able to get a hold of my rheumy today I guess due to the wheather...but the last time I saw her she said it was probably my firbo flares (and gave me Lidocaine injections in the bursa of my hips, which helped for a little while.)..I dont thinks so though. This is way to painful to be fibro...and having 2 flares in the last 3 days is more than Ive had in the year that Ive be diagnosed. This is so crappy!! I'm so miserable because I havent gone to work for 3 days and my depression is sky high!!
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