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Not wanting to be a whiny butt

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Lupus
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Posted 4/7/2013 3:45 AM (GMT 0)
I don't want to be a whiny butt but I have a hard time determining when to go to the doctor with this mess. I know I'm stuck with a life of pain and I need to learn to deal with it, but I can't really determine how much is too much. I've taken 2 tramadols today. Which is more than I normally do to get through the day.

Also, I don't have insurance and I was raised to go to the doctor only for important things.

Right now I'm in misery. smhair

I'm having more pain than normal lately. From my left shoulder down to my fingers is so uncomfortable. Same goes for my ribs on the left side. A bra is pure torture for me. My right shoulder hurts for anything to touch it.

When I walk around for any length of time my right knee starts popping and hurting on the outside part of my leg and sending little pain shocks down it. I don't want to wear my shoes because my feet feel so swollen even though they don't look swollen, just very sensitive to the pressure of the shoes. I'm actually wearing shoes a half size bigger than I used to because my feet are so sensitive.

I'm losing more hair in the shower too.

Should I call the rheumy and ask for something? Last time he gave me a predisione pack. It helped a lot but I crashed again 2 days after the pack was done.

Posted 4/7/2013 4:12 AM (GMT 0)
Sounds like a flare. If you're still hurting like that by monday morning you need to call your rhuemy for something.
Posted 4/7/2013 6:31 PM (GMT 0)
 

Hi Joy,

      I would definitely talk to the Rheumy if you are having that much discomfort.  I know that sometimes I will try to "wait it out" before I call the Rheumy and I end up paying for it.  At least have a conversation over the phone.  It's not good to be in pain and feel miserable.  Remember, your doctor is your partner in your treatment. 

Laura

Posted 4/8/2013 12:07 AM (GMT 0)
I would call and talk to someone if you are not better by Monday. A steroid would probably make you feel better.
Posted 4/8/2013 6:08 AM (GMT 0)
My niece says I'm throwing off a lot of body heat. I have been kind of warm like. Even thought the thermometer never register above 97.3 on me. Most days I'm at 96.1.
Usually when I start feeling hot to the touch I will start feeling worse. As soon as I wake up in the morning I'll call the Rheumy. sigh...I hate being sick so much.
Posted 4/10/2013 3:43 AM (GMT 0)
Joy I hate to hear your having a very bad time!!! I can really relate to the knee popping, swelling and PAIN! I would suggest making the call. My experience with specialists is that when you really need them they'll get back to you in a week or two. I don't really know all that's going on with you but Tramadol isn't going to help much " i'm not a Dr. just my Opinion". Tramadol don't help me too much but I have those and 10/325 Lortab 4x day Rx but I don't take them unless I need them. You need to feel some pain :-( In the meantime maybe get those feet elevated and I hope you get well soon!!!
Posted 4/10/2013 6:26 AM (GMT 0)
My problem is I'm too wishy-washy about my pains. Since I'd injured my back in a car accident over 20 years ago and have suffered with back issues I've always gauged my pain by my back pain. If the pain in my joint is worse than my back I take pain meds. If pain med doesn't help then I call the doctor. But if I get relief even temporary I start to second guess myself.
The fever I was running stopped overnight, my rash has gone, pain's down to a tolerable 4, but my ears are louder than ever with the squeals.

Do any of you have bad tinnitus?
Posted 4/11/2013 7:07 AM (GMT 0)
  Glad to read that your doing better!  My ears are ringing very loud now. What does tinnitus mean? I thought it was due to working in a mill but it started 3yr later no longer working there. I hope you get even better!
Posted 4/11/2013 9:02 PM (GMT 0)
There is several causes for tinnitus:
If it has a "beat" to it it's to do with blood pressure.
If it comes and goes it's nothing serious.
If it's constant level it can be hearing loss.
If it's one ear it could be a tumor.

Mine is constant with no beat. It's just a steady "eeeeeeeeeeeeeeeeeeeeeee".
I guess I need to see an ENT. Sigh $$$$$$$$$$
Posted 4/12/2013 1:41 AM (GMT 0)
Mine is constant "eeeeeeee" and at times it will build up so loud that it drowns out anything on tv. Very annoying! I think might get min checked into with ENT. I'm on Medicare/ Healthspring . Specialist is $35. Hope you get to feeling better and good luck!
Posted 4/12/2013 2:35 AM (GMT 0)
I have no insurance. That's why I hold off going to the doctor unless it's for a follow up or must have.

I'm hoping that I will be able to get something soon.
Posted 4/12/2013 7:44 PM (GMT 0)
Its none of my business and if you rather not say I'd understand. I think that all the problems you've ot have you applied for disability? I had to get on it "its not where I wanted to be this stage in life" but its helped me more than I could ever explain! It seemed like it took forever to get but its worth for to have it.
I wish you could find a way to get some kind of medical. Best wishes to you!
Posted 4/13/2013 2:41 AM (GMT 0)
I've applied, been turned down, and now filing an appeal with my lawyer.

I need medical but no insurance will cover me because of the Lupus and the Fibro. My doctors are working with me on reduced rates but it's still too much for my little check from long term disability.
Posted 4/13/2013 3:02 AM (GMT 0)
  Have you applied for SSI/Medicaid? My lawyers didn't care about helping me on that. I wonder if its because if your already on SSI/Medicaid that you get processed sooner for SSD/Medicare? My Administrative Disability Judge asked me during my hearing if I had gotten on SSI yet and I told him that I tried several times and was turned down. The Judge got fairly ill and told me to call them again and told me to give them his name and tell them that he recommended them to get me started on it, also you have to get on SSI even before you can get on SSD. I just wanted you to know that so you wont run into the same hiccups as I did. If you can get on SSI at least you can have Insurance and some income. I hope you get approved soon!!!
Posted 4/13/2013 5:26 AM (GMT 0)
They sent me a letter of denial on it and determined I wasn't able to do it.
Maybe I'll try again for it.
Posted 4/13/2013 7:55 PM (GMT 0)
Yeah keep trying because denying is standard procedure I think . I believe I have talked to you about this before. I couldn't remember who it was. Is there a free health clinic that you could try going to? I never went to one but that's what their there for. Stay strong!
Posted 4/13/2013 8:21 PM (GMT 0)
Sort of, it's staffed 2 days a week by a NP and a doctor.
I used to go there until my favorite doctor moved away and another one came in who was very rude to us. When she left a semi-retired doctor came in. He's not the best doctor for my complicated conditions.

My PCP who I go to right now does a sliding scale fee. My specialist cut their charges if I pay in full right then and for reduced fee.
Posted 4/14/2013 11:57 AM (GMT 0)
I have never applied for SSI and I have SSDI. I know many people who make to much even on Short Term/Long Term disability to be approved for SSI. And to answer you question...I generally wait for my scheduled apts unless something scary happens. I suffer with the pain until I see rheumy because I can't afford visits everyweek.
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