Mono?

So Ive had odd health issues for over 5 yrs. Starting with neuropathy (stinging pains in joints and non stop twitching ALL over), odd rashes...then lots of bouts of upper left stabbing pains-drs think its my pancreas based on labs but scans clear. I also get pinching pains in my lymph nodes.

Ive been dx with mono 2x in the last 4 months. Presents with sore throat, body pains and extreme fatigue.

Ive had tests for lupus in the past, all normal. I read that mono can present with ppl who have lupus. Im also asking to be tested for lymphoma.

I just cant help to think all of these odd things are related.

Are people with lupus susecptible to recurrent mono as Ive read this is rare unless you have immune issues.

Hi there-yes I was positive for one of the markers-but in reading more and speaking with many drs I've learned many of these Lyme drs are "quacks". I was put on a ton of meds and frankly could be my pancreas started acting up. I didn't want to keep pumping myself with loads of meds unless I was sure and I just felt I wasn't confident in that dx. I've been bitten by a tick before but never a rash and no big sickness until my 30s which would be 20 yrs after the bite. My mono just started popping up and hoping its not lymphoma. Going to a rheum today

What are your symptoms?

I was bitten years ago too, but am now told, one of the hallmarks of the disease, is that it attacks when your immune system is low. For me I did a big move on my own from south England to Scotland, with two young children, a very busy job etc... So chronic stress. Anyway my symptoms....

Started with a cold/cough that lasted for three weeks. Then four or five episodes of lightheadedness. I then suffered a migraine with aure (always had these). A few hours later the left side of my face went numb, this then dropped to my left arm and leg, then 'jumped' to the right side. Prescribed amoxicillin for sinusitis, which stopped the tingling/numbness. Once anti b's stopped, it came back with a vengeance, all over, no rhyme or reason. Muscle twitches literally everywhere. TMJ problem. Migratory joint/muscle pain. Sciatica. Gerd symptoms. Painful soles/burning feet. Panic attacks, mood swings/depression. Derealisation. Beaus's lines. Pressure in my face, feels like its behind my nose/cheeks. Knee pain. Dizziness.

All bloods so far are clear, although borderline low on Vit d. MRI completely normal!!

Would just like some answers, so I can get back to being me!

Since y'all are having a Lyme discussion you might get more comments from experienced people by going over to the Lyme board.

Most of us here in Lupus are NOT Lyme-literate.

Cheers,

Nab,

You have posted on a thread that is 4 years old, and the person you are addressing has not been here in all that time. I don't know what your specific issues are, but you might find more help on the Lyme Forum rather than here on the Lupus Forum.