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Posted 12/29/2013 9:01 PM (GMT 0)
I know I'm asking a bunch, but I'm trying to gain as much knowledge for my Rheumy appointment tomorrow as I can. I've noticed that since on my Gluten free diet I still have intestinal problems, that seem to be worsening. I have been having more than usual nausea and stomach pains that are sharp and seem to last all day. I've already had an ultrasound done that came back negative, so I'm at a loss. Has anyone else experienced this type of pain? How often? Like I said, I'm running to the bathroom like 6 times out of the day or after every time I eat. Stomach pains from the moment I wake up...till bedtime. :(. Thanks so much everyone in this forum. I appreciate all of you for helping me and taking the time to answer me. Bless you all!
Posted 12/29/2013 10:37 PM (GMT 0)
Hi melody.
I'm new as well and am experiencing something similar. Do you get up during the night and go too?
Ironically I had just had a colonoscopy when the stomach pains started Then I had an ultra sound. Also nothing. My DO said not to be surprised if it showed nothing.

I do not see a rheumatologist til the end of January. I'm eating a lot of rice. Seems to help -a little. I'm not running all day long, but I still get up early early in the morning and run to the bathroom.

I'm very interested to hear what your rheumatologist says.

Blessings!
Pt

Ps. My pain isn't sharp like stabbing. But significant.

Post Edited (Purple Tulip) : 12/29/2013 3:41:33 PM (GMT-7)

Posted 12/30/2013 12:04 AM (GMT 0)
I'll be sure to post a response as to what he says. We're in this together! :)
Posted 12/30/2013 12:10 AM (GMT 0)
Thanks!
:)
Posted 12/30/2013 1:24 AM (GMT 0)
Hi Melody,

How long have you been gluten free? Sometimes even though you think you may be gluten free you may be still getting glutened. There are some people who are so sensitive that little pieces and I mean miniscule can make you sick.

Then a lot of people once they go gluten free find out they have other sensitivities to other foods. Like dairy, to help you out on that check the forums over on celiac.com. It's for people who have Celiac disease plus food sensitivities.

I had to do a food elimination diet and I found I am so sensitive I couldn't eat anything but a whole foods diet.

Then it could all be entirely something else.

Hang in there
Posted 12/30/2013 1:57 AM (GMT 0)
When I had GI problems (diarrhea, bloody stools, abdominal pain, weight loss and nausea) every test I had came back negative. Through a process of elimination, the GI doc determined that I had bacterial overgrowth and hypermotility in my colon. I made a change in my diet, added probiotics and stopped taking Prilosec (it had been prescribed for a pre-ulcer condition in my stomach). Long-term use of Prilosec can cause bacterial overgrowth. That really seemed to help. I was also put on high dose Prednisone for a week, which kicked back the inflammation. I occasionally still experience similar symptoms, but they are not as bad as the first time. The food culprits for me are wheat and dairy. When I back off of those two, I feel a whole lot better.

Laura
Posted 12/30/2013 4:23 AM (GMT 0)
Something else to think about: gluten is in many other products besides food. Medications (both prescribed and over the counter), shampoos, conditioners, toothpastes, etc. Additionally, as was already mentioned, once gluten is eliminated, other sensitivities develop or become more noticeable. I cannot handle soy - it causes as bad a reaction as gluten. And I am one of those lucky people that cannot handle even a miniscule amount of gluten.
I would suggest keeping a journal. List everything you put on or in your body. Hope you start to feel better. And, good luck at the doctor's!
Posted 12/30/2013 4:33 AM (GMT 0)
Gosh, thank you so much everyone! I'm taking all into consideration and noting everything. I am so humbled and blessed to have come upon this website and forum to have been able to chat with all of you. Thank you again!
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