Lupus symptoms

I sometimes feel like I might be misdiagnosed. I noticed that a lot of people with lupus are sensitive to sun, get rashes and feel really exsausted. My hands do turn Blue or white, headaches , eye pain, dry mouth,brain fog, muscles soreness here in there,frequent urin,fingers swell up sometimes, trouble straightening out my arms because elbow hurts.lightheaded. The funny thing is that a yr ago I would get fever often and really bad muscle pain that I would cry. Would have to take hot baths to ease the pain. It just stopped happening. Until 3 mornha ago I was diagnosed with lupus because my arms would hurt when I would stretch them out.

Yes.
Systemic lupus profile a :
Rnp antibodies >8.0 high
Smith antibodies 1.3 high
Ra latex turbid 43.6 high
Antichromatin antibodies >8.0 high
Sjogrens anti-ss-a <0.2
Sjogrens anti-ss-a <0.2
Anti-DNA (ds)ab qn <1
The ones that say high is the reason why dr told me I have lupus.

Headaches. Eye pain. Dry mouth. Hands turn blue or white when cold. Back aches fingers swell up and turns red where it's swollen. My right arm or left arm hurt sometimes when I try to straighten them out. Stomach pain once in awhile. Frequent urination. Fingers twitch and toes too sometimes.

Thanks for the info! ;)

My mouth has spells of being dry. I use Bioten mouth gel. They have several items to help mosturize your mouth.

I've seen it in several stores, walmart, cvs, walgreens, rite-aid. It is normally near the toothpaste & mouthwash area. They've been doing several ads for it on tv lately.

Biotene products are great for dry mouth! when I was first diagnosed with Lupus, I had such a dry mouth. I had a bottle of water with me everywhere I went. And I had really dry eyes, had to put eye gel in my eyes every night. But since I got my Lupus under control, all those dry symptoms went away. But Biotene has several products and they are also used by hospitals.
As far as vitamins, I think taking vitamins is super important. The only supplement I have read and been told that Lupus patients cannot take is Echinacea, because it boosts the immune system and can make you flare.
Make sure you buy good quality vitamins, in capsule or gel cap form, not tablet. Your body does not absorb tablets as well. I take a multivitamin,Vitamin. E, Vit. C (1-2 gms daily with lots of water!), Vit A for my skin, Vitamin B complex (energy!), calcium with D, and extra Vitamin D. Omega fatty acids are soooo important! They are naturally anti-inflammatory.
You do need to be careful with supplements if you have kidney issues, or have high potassium, so always ask. I am lucky to have a rheumatologist that stresses nutrition and supplements to help manage lupus. He also recommends DHEA supplement, which is a hormone that woman with lupus tend to be low in. You can have your doctor check your DHEA levels, and take the supplement accordingly.

Natalie.

Another suppliment to avoid is melatonin. For some reason it can cause flares too. Not all doctors are aware of that.

Thank you Natalie :)
It does mean a lot of me!
Now I know from where to start my way finding a doctor. I don't know why it's so hard to get an earlier appointment to a doctor. In Romania it can't take more than few days.
However say hi to the Romanian surgeon.
Take care of you!

CORINA