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Shooting ear pain

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Posted 5/13/2014 7:56 PM (GMT 0)
Hi all, I'm new to the sight and came across it by accident. Googled sharp outer ear pain and then saw some links with lupus, was very shocked. Recently had a couple of mouth sores and now the sharp shooting ear pain which stops me in my tracks. Would never of thought that it could be related to the lupus. Also can get a feeling that I'm going to fall poorly for 3-4 days which then disappears. Does anybody else have any of the above?
Thanks and look forward to your responses.
Posted 5/13/2014 11:14 PM (GMT 0)
Have you been tested by a rheumatologist?
There is a list located at lupus.org where you can see the requirements to have lupus. You must meet at least 4 of the 11 indicators.
Posted 5/14/2014 9:13 AM (GMT 0)
Hi, I'm sorry I didn't make myself clear . I was diagnosed 5 years ago when I had my daughter. She developed the famous rash and bloods were tested and I was diagnosed. She, luckily, was fine the rash disappeared as she was loosing my antibodies.
Posted 5/14/2014 10:27 AM (GMT 0)
Hi Ash73 and welcome! I get shooting pains in my head, ear and up my nose. Always on the left side. I'm now learning that it could be related to nerve issues. It's something you should definitely get checked out as soon as possible.

My daughter is adopted and was born with hepatitis C from her birth mother. Luckily she tested negative as well as she lost the antibodies. It's pretty amazing how that happens :)
Posted 5/14/2014 4:35 PM (GMT 0)
Ahhhh, thanks for your reply, will defo tell the rheumatologist when I next go.
It is amazing hey how they loose everything once the antibodies are gone.
Posted 5/15/2014 10:23 AM (GMT 0)
I was advised by the lovely posters here to not wait when possible nerve damage is concerned. It can become permanent. I'll pass that advice on to you, when is your next appointment? You should probably call and let the rheumy know what you are experiencing sooner rather than later.
Posted 5/15/2014 7:56 PM (GMT 0)
Hi I am new and have had Lupus since 1992..with very slight flares...but since turning 50 plus I seem to be getting worse...today I have a bump on my right lower ear lobe and it was itchy and it bled.....I have been to my Dr.and he gave me Bactroban Cream for the previous flare but it has never bled before...and it seems to being caused whenever I put pierced earrings in....gets so deflating at moments like these....but encouraging when I come on here to read I am not alone...Thanks for all your honesty...it helps me
Posted 5/15/2014 10:08 PM (GMT 0)
Hello Nana--

Great to have you here, and I'm sorry it's under crummy circumstances!

Please start your own thread so that folks will reply directly concerning your situation. This forum is terrific.

Jan
Posted 5/17/2014 10:50 PM (GMT 0)
Ash, I have had bad ear pain for around 6 months. This last time that I went to the ENT, I had ear pain, loss of hearing in one ear and dizziness. The doctor did some vertigo tests on me but by the time I got an appointment (3 days after the symptoms), the dizziness was gone and my hearing was back. She basically told me to call and tell them that she said I was to be in the same day next time it happens and then indicated that she thought it was an autoimmune issue. The pain is the most recurrent symptom and like you, it's often very sharp. She just couldn't figure out what it could be, thus wanting to see me ASAP next time and send me to a rheumy.

She originally thought it was LPR silent reflux. Maybe try googling that? But I took the meds she gave me and it didn't help all that much.
Posted 5/18/2014 9:09 AM (GMT 0)
Thanks so much for all your replies, they really help. I do think it's all connected and part of a flare up. I'm gonna go back to the drs this week and see what she thinks.
Take care ladies. :-)
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