my four year old have lupus?

Hi!

I am trying to make some sense of her lab work, while waiting to get in to the see Rheum. So far her anti-dsDNA has come back elevated, twice. First time was 472, second time at 573 (normal range is at or below 200). Her CK level is elevated in the 700's (normal at or below 200). Her Creatinine level is below normal, low. Complement Total CH50 is elevated, while here C3/C4 were in normal range. Does anyone have any insight of what we could be dealing with? What brought us into the office originally was she had a fever for four days right during Easter, after the fever broke, the following day she wouldn't walk. She was in pain behind her knees. She has complained of pain in her thighs, knees, forearms, headaches, feels dizzy sometimes. Thank you!

My guess is that it is not lupus but something inflammatory, infection or autoimmune, is going on. It is a little odd that cpk is elevated that much in a young child. CPK is not normally elevated in lupus but is associated with other diseases that are more muscle related. Lots of possibilities.

Also, keep in mind that just because you test positive for an antibody associated with a disease does not mean you will actually get it. Most autoimmune diagnoses are made with a combination of labs, clinical symptoms and sometimes other tests. Never easy. Hope you can get the doctor quickly.

Bill

So sorry she hurts so much.
I hope the rheumatologist can help her feel better.

The rheumatologist will use a specialized list of 11 indicators to see if it's lupus or not. She has to meet 4 out of the 11.

I hope you can get some answers quickly.

You and your wee one are in my thoughts. I can only imagine the worry you must be experiencing right now. Sending big hugs and my hopes that you will get some answers and relief for your daughter soon. <3