(No Subject)

My partner was just diagnosed with Lupus, Mixed connective tissue disorder and sclerdoma . Does anyone know of some natural things we can do to make it easier. We are still waiting for the Rheumatologist to call us to make an appt. The unknown is so scary, and looking on the internet makes it even worse.
Any advice would be helpful. thank you

Joy you pretty much nailed it. The only thing I would add is avoid high stress or find ways to cope with it. That's something I personally struggle with very much. I think I freaked the rheumy out last visit when it became apparent how absolutely stressed out I was. It can definitely railroad you with a flare. Don't sweat the dx too much, write down your questions and concerns to ask the rheumy. You'll figure out what works best for you both. I think it's great you're doing this for your partner.

Yes, those are big no-nos.

Also avoid melentonin. It increases your immunity too.

B-12 is fine.

What you don't want are things advertised to "boost the immune system". Lupus is the fancy name for an over-active immune system, which is what we have. Take our over-active immune systems, boost them up to be even more over-active, and you get a big mess!!!

Also, always tell your Drs at every appointment what you are taking, both prescriptions and over-the-counter. Include vitamins, minerals, and any other supplements. Include if you are trying any special diets that are different than what you would normally eat. I generally take a drug list with me that includes this stuff and my med allergies. Better to tell them multiple times than to have them overlook it!!

Lupus patients are often low in B-12, Dr's often tell us to take an over-the-counter B-12 supplement. It is one of the water-soluble vitamins, so you can't overdose on it, and it IS NOT something that will boost the immune system.

It is quite safe to keep taking it. It helps improve mental processing!


By the way, MELATONIN is also safe. Couchtater is incorrect, it does not "boost the immune system". Of course, always check with your Dr if you have any questions.

My pharmacist and my rheumatologist both tell me that melentonin is bad for lupus patients. Talk with your doctor before taking anything.