Confused and frustrated!!!

I have a Rhuemy appointment Monday, but I just got done with my monthly Dr visit and got all my blood results. Once again they are all negative but I have just about all the physical and visual symptoms. He is keeping me on the Plaquinil and steroid cream for the lesions on my face and the small bumps that pop up all over both upper arms and lower back. He still believes very strongly in the diagnosis regardless, but it's bothering me so much not having that written proof. I'm still going to stay out of the sun as much as possible, like I've done for years when it started making me feel horribly sick every time I went to the beach, pool or backyard party/BBQ.
Has anyone gone through this too??? If so, how did or do you cope???

I very much agree with your last sentence. That's the problem. I do want to make sure I am getting the proper treatments. I'm scared that without a definitive answer I won't.