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Posted 5/8/2017 9:32 PM (GMT 0)
Hey y'all.

I'm new here, and I have UCTD. So I'm sorry if I'm repeating a question someone else has already asked...

Right now, I am going through a flare. I knew it was coming because I started getting WAY more tired than usual (how can that even happen), hair started falling out more, etc...

My question is.. do y'all normally feel a flare up coming on? And if so, what do y'all do besides rest and meds? Any tips for a newbie? Just diagnosed with UCTD last month.

Thanks in advance. smile
Posted 5/8/2017 10:01 PM (GMT 0)
Yes, it's fairly common, especially after you get used to a disease like this, to know when a flare is coming. It's a bit like feeling the flu coming on...

And treating it is also kinda' like what you'd do for a flu. Eat regularly and as healthy as you can. Rest, avoid stress, avoid the sun & heat. Mild exercise, make sure to get deep, restorative sleep.

If you wake up more tired than when you went to bed, consider a sleep study - or if you wake up a lot in the night. It may be that you need a sleep aid of some sort. Sometimes we can sleep 14 hours and still be tired, that's what happened with me. I thought the Dr was crazy when he gave me a sleep aid - I was sleeping more than enough, I thought. Turns out I needed DEEPER sleep!
Posted 5/9/2017 3:27 AM (GMT 0)
Welcome to our forum bamablondie. I've had Lupus for years and sometimes the day before a flare I'll get a bright red butterfly rash, but other than that obvious sign I can't usually tell. For a few years I have been constantly sick so that makes it harder to predict a flare.

My very worst habit regarding taking care of myself is that when I feel partly crappie as opposed to crappie, I "take advantage" of my newfound energy and I do too much. Lupies must learn to pace themselves and rest often during the day. If you do too much, you can cause a flare. So a flare is over, I have some energy, then I work too hard and I flare. Bama, when you are past this flare, pace yourself. Perhaps someday I'll learn. Love, Butterflake
Posted 5/9/2017 3:38 AM (GMT 0)
Some can recognize a flare. In my case I do not because it goes after organs or blood....not the usual stuff. every case is different but most patients do know when a flare is coming and have a particular signature for their flares. Old guys like me seem to have a different pattern and often more serious because of the silent attacks on organs and blood, etc.

Bill
Posted 5/10/2017 4:19 PM (GMT 0)
I feel very ill when it's coming on... I almost get shakey and cold similar to the flu... then comes the joint/muscle pain. I try to rest when I can but I work and I have a 5 and 3 year old. Resting isn't easy.

I'm currently in a 3 week flare after coming off Prednisone. No sign of it going away anytime soon either.

Im also a newbie. I'm trying to figure out how to lessen flares and what not. So far I've flared more than I've been healthy so obviously I'm not a good one to give advice. Haha
Posted 5/10/2017 4:56 PM (GMT 0)
Thanks for the warm welcome everyone! smile

But yep - still feel lousy. Last night I was so tired, but my body was so restless I couldn't sleep. My back ached, my legs ached, and my arms ached, but I couldn't lay still. I tossed and turned. I tried everything I could think of to try to get comfortable, but nothing worked. My body just had to move. My feet and ankles were SO swollen and in so much pain - yesterday it was hard to just walk around the office, but I managed (thank God for a desk job).

I need rest. I usually sleep 10-12 hours a night. I've called my rheumy and he just says to take Aleve and extra strength Tylenol for now...
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