anyone on this board from De area willing to talk via a real phone? Kristen maybe?

Hi Chaya:

I just wanted to say welcome to our forum. Sorry you've had a bad day. I saw your earlier post about John Hopkins Hospital. I have to say that my experience with them was a bad one too. The doctors that saw me wanted to undiagnosed me and I wasn't having a part of that. I live in the metro DC area and I go to the National Naval Medical Center. Some of my docs are good and some aren't.

I'm sorry you're having a tough time finding anyone to help you. I hope that you find a doctor soon that will listen to you and help you get your pain under control. To answer your question so of the members here exchange phone calls time to time, or emails. We try to meet up in the chat room daily and talk with each other.

I understand your frustration I've had lupus 19 years now and I'm also sick with a rare blood cancer. I'm dying and there's not a darn thing I can do about it. Except to hold on and go for the ride. Anyway, welcome again and looking forward to hearing from you.

Take care,
Barbara

Hi Chaya:

You can go into the chat room from this page. If you look to the right under forum links you'll see the link to the chat rooms. I'm going to go into the room now, if you'd like to chat. Yes, they think my usage of cytoxan to treat my lupus is what caused my cancer. It's a risk we've got to take and face.

Looking forward to seeing you in the chat room. I'm off to the room now.

Take care,
Barbara

Chaya,

I go to a local Lupus support group every month and I love it. Being face to face with someone and actually being able to understand them and vice versa is very refreshing. When you try to explain what you go through to people that could not begin to understand its so frustrating. The chat room here is nice too even though usually I can't make it since I'm at work. I hope you can find the support you need. Its out there!!

Take Care