Flaring Again

Hi All:

Well, yep, I'm in another flare. I felt so bad this morning when I left for my doctors appt I took my pj's with me expecting to be admitted to the ward. My PCM of course prefers to keep me out of the hospital whenever possible. So she's developed a plan for the week and if I'm not much improved by next Monday then I'll probably be admitted.

Last week my Sed rate and CRP were so so, today they were once again back in the ugly range. I'm having pain over my kidney on the right side and mentioned I noticed some blood in my urine. Had to give a urine sample and blood they certainly got. It looked like a small cup of cherry koolaid. Of course we're uncertain as to why I've got blood in my urine once again. She spoke briefly with my rheumy and mentioned that my CT scan of my belly showed that my blood clot is gone and I'd like for him to reconsider starting humira for my RA. He told her to have me make an appt to see him.

So the plan is to double my medrol dose. Up my pain meds, drink lots of fluids, get as much rest as possible, use the magic mary's mouthwash for the ulcers in my mouth and throat. She really doesn't care if I eat or not, but fluids are a total must, no dehydration if possible. If I continue to worsen during the week then there's always a doctor on at the ER. Of course, ER visits for me are a direct route to the ward. The ER staff doesn't want to deal with my "issues". My h/h, rbc, and wbc are all low and there was a mention that I may need a blood transfusion next week. My platelets are low but not critically, oh and I need to remain on blood thinners until January, then we'll talk about stopping them or not.

So that's my update, not looking forward to thanksgiving at all. I'm planning on just crawling into my bed and sleeping. I hope you all are feeling better than I am and can enjoy your thanksgiving holiday. Take care and be well.

Hugs,
Barbara

(((((Barbara))))) I'm glad you got a nice visit in Florida before this ugly flare. Good memories to cherish while you are mending. I hope you can stay under the radar of being admitted, but sounds like a good chance you'll wind up there. Sorry sis . . . sending you a bottomless pot of nice hot tea! Blessings!

Try to rest. Sending lots of hugs your way.{{{}}}

(((((((Barb)))))))), I'm so sorry you had such a nice time on vacation and than to come back to this. Yes it does sound like a transfusion made be in order. If so I certainly hope it helps get you feeling a bit better. I know sometimes it's really hard to find things to be thankful for. i hope you are getting some rest and that your med increase is going to start to help you feel better at least enough to try to enjoy thanksgiving a little bit. Please let me know if there is anything I can do to help.
Your in my prayers
love
carol

Barb, you sweet thing, I'm so sorry you're not doing well. It's good that you realize you just need to go to bed and sleep for a few days. Do try to eat a little when you can. I hope the increase in your meds helps to make you feel better. I'll check in on you more often.

Hang in there. A little piece of pumpkin pie can't hurt.

You're always in my prayers.

Love

Pat

Barb, I hope you're resting comfortably today and that you're able to enjoy Thanksgiving.  (((Hugs)))  Love, Butterflake

Barb, sorry it took me a while to see your post. I'm so sorry that things have taken a downward turn again and that your labs are getting worse. Please take care of yourself and let other people handle everything, especially with Thanksgiving. You're in my prayers Barb. Love and hugs

Hello:

I need to scream, may I do it here? I'm so so frustrated with being sick, I can't do this anymore. I can't handle another day of flaring. I called my doctor on Monday as directed to, she didn't call me back until Wednesday and I couldn't be seen by her this week. She had me see one of her colleagues, who determined I was way way dehydrated and needed to have 2 large bags of IV fluids. All of my labs look good except for my CRP, it's through the roof. Of and my cheeks are so red I look like Santa Claus. If I have one more person say "but your cheeks are so rosie looking" I may scream at them.

My doctors are back on one of there "We don't want to admit you, it better this way for you". We d@mit it's not better for me. I feel like I've been flattened an Amtrak Train at full speed. I'm hurting everywhere even my fingernails hurt. Why can I get a single break just for once. Plus I'm still waiting for my Judges ruling in my SSDI case. It's been 9 weeks today since I did the hearing. Why does God hate me so bad? What have I done to deserve all this crap? Ugggggggh I can't stand this I need something to go right in my life. I'm sorry I'm dumping on you all tonight, if I don't do it here, I'll take it out on my family and that not what I want to do. I don't want to burden them anymore than necessary.

Thanks for letting me rant and rave. I'm going to take some pain meds, plug in the heating pad and try to sleep. Thanks for just being here. I love you all and have a good night.

Love,
Barb

((((((((Barb)))))))) Hang in there and know we are always here for you. You have to deal with more than any one person ever should have to deal with, so it's very understandable why you would get angry and sad and frustrated. especially since the docs don't seem to know what to do to help. I hope the heating pad helps. I can't remember if you have an electric blanket or not. I just got one and crawling into it when I hurt feels like heaven. I like the idea of throwing eggs - that might be kind of fun. I'll have to tell my kids and hubby about that one - it might be a great way for all of us to relieve our stress. Barb, you are always in my thoughts and prayers.