Kidney disease

I have mctd (lupus, scleroderma and polymyositis) and had stage 2 kidney disease.  The diagnosis was proteinuria and I ballooned up 2 times with 15 lbs due to edema in just a few days.  The nephrologist treated me with lisinopril and got things in line within a few months.  My kidneys function totally normally and I still take a low dose to make sure they continue to function properly.  I was lucky that my doctors were so observant and aggressive.  No problems today.

Bill

Welcome to the forum. I have end stage kidney disease secondary to Lupus. What are the plans for your treatments? Are you taking any meds? I would be happy to answer any questions I can. God Bless yOU, judy

hi texasrose,
i would one of the ones with kidney problems and i am also one of the ones that had a kidney transplant. when i was diagnosed in 1995 (then 13 yrs old) they did a biopsy and found me in late stage 3 very close to stage 4, but my pediactric nephrologist was very agressive with my disease and he was able to keep me from ESRD. in the first couple of years after i was diagnosed i flared up 2 twice before i graduated high school. i almost had to have a transplant in '98 and i was also on dialysis, but for some unknown reason my kidneys started working again and i didnt need the transplant. from '99-'03 i was in remission and it was great. i was taking maintance dosages of prednisone and i was also taking plaquenil for the lupus and every was going great until the fall of '03 i went into a flare and my kidneys never recovered so in the spring of '06 i ended up having a kidney transplant (my dad was my donor) and i actually just flared in march of '07. so for me it has been a long, hard, bumpy road but i'm still here fighting. i actually have avascular necrosis from the prednisone and they are talking about knee and ankle replacements and core decompression for my hips. i know all this probably sounds really bad but unforunately this was and still is my experience with my lupus nephritis. this last flare was really bad though because the docs said that it was possible with the new kidney that i wouldnt flare anymore but apparently i am in the 10% of transplant patients where they actually still flare after the surgery, but i have my support system and i am seeing a pyschologist who is helping me cope with my emotions and the docs put me on anti-depression meds, but remember no one person with lupus is the same. you may or may not have the complete opposite experience that i have. good luck we're here if you need us. and welcome to the forum you will find some wonderful people here, i know i have, i dont know what i would have done if i didnt find this site, i actually wish i found it when i was younger and so confused and feeling so alone with my disease.

Thank you all for your response and sharing.  I heard this one  and it hasn't left me probably because it easy to remember and it is simple. "stand up, look up and never give up". Although as well all know sometimes it's easier to say than do. God Bless you all. I can tell this is a great group of people.

Welcome to the forum Survivor!!! Wow you are dealing with a lot of health issues. I'm sorry you are so young and dealing with SO much. Do you have lupus too??? My s-i-l has autoimmune liver disease and is doing very poorly . . . the domino affect of the high dose steroids and her resulting diabetes, osteoporosis and very thin skin is just killing her. She's also got some lung issues which have not been properly dx'd yet. I hope you'll post a new topic on the Lupus forum and introduce yourself. Your post will get lost in here and members won't get to say hello. Thanks for your encouragement to Texasrose . . . . I just love this forum for all the helpful members!! Blessings!