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Posted 1/9/2008 4:39 PM (GMT 0)
Would someone here be able to look at my short list here and tell me if i should even bother with looking at lupus?  I am currently waiting to get some lyme's bloodwork back, but i've had these symptoms for a long time.  Thank you. Achy joints, mostly hip and neck right now, but also knees and my hands and feet have ached for years and years. Pleurisy Swollen lymph glands, right side of neck on and off Extreme fatigue on and off Muscle fatigue Low immune Headaches, will even wake up with one in the morning I get itchy tingly skin sometimes Insomnia periodically with discomfort - or sometimes its just hard to sleep because i'm uncomfy On again off again inflammation in intestines (but got my clean bill of health with a colonoscopy last spring – used to have colotis). Will feel fine one minute, wasted the next Can’t exert or push myself too much or I get sick dizziness Post Edited (Raea) : 1/9/2008 10:36:14 AM (GMT-7)
Posted 1/9/2008 6:00 PM (GMT 0)
Hi Raea, Welcome to the forum. There are some matching symptoms. Problem is: Lupus mimics so many diseases. If this is your short list, I would suggest that you check the links provided at the end of my signature. There is lots of great information there and you may see some more symptoms that match. Are you sensitive to the sun? rashes? mouth sores? rash on your cheeks? Each of us has a different combination of symptoms and none of us has all of them. Actually, colitis can cause a lot of your symptoms too, if that happened to flare. But the plueresy is a red flag for lupus. One of the links is "4 of 11 criterea". That may help too. I know that a lot of the symptoms for lymes and lupus are very similar. If you still have concerns that it may be lupus, you should probably see a rheumatologist who specializes in lupus. Other doctors just don't have the background to dx or treat lupus. . . . and you may end up frustrated, as this disease usually takes a LONG time to dx anyway. Many of us waited years for a dx. I hope you'll keep us updated! Blessings!
Posted 1/9/2008 6:52 PM (GMT 0)
cold sores are a big problem for me. If i keep lysine and pantothenic acid handy, I can at least keep them minimal, But i get them pretty regular.
I burn easy.
Rash...do you mean like those blotchy redness with heat that i tend to get on my face, neck and chest...sometimes arms and abs too...never really knew what that was all about. Just always lived with it.

Thank you - I will look into those. The doc i'm seeing said he'd give me a referal to whatever I need (I looked pretty bad that day), but he wanted to rule out lymes for sure first.

And I will let you know - i'm on my mission to get better!!
Posted 1/9/2008 8:13 PM (GMT 0)
Great Raea . . . it would seem a good idea to rule out Lymes first . . . I might be wrong but it would seem an easier item to rule out. When you get rashes (red blotches) and mouth sores . . . take pictures if you can. These are helpful to the doctor/rheumy when you finally get to see one. Especially if you are feeling better by then. Its not uncommon for a first appointment to take over 2 months to get in and see a good rheumy. . . so you'll want to have all your homework done and make good use of the time. Tips in "Lupus Resources" Sounds like your doctor is doing good by you and empowering you to track this down. Go for it! Blessings!
Posted 1/9/2008 11:18 PM (GMT 0)
Hi Raea, Welcome! This is a great place filled with great people.

I agree with Rosie, it sounds like you've got a good doctor and it's good that he is checking into Lyme's first. Although I don't know a lot about lyme's I hear it can mimic lupus (along with other illness' too) but your symptoms are certainly worth looking into. Most of your symptoms sound all too familiar to me, even down to the intestinal problems as lupus attacks my GI tract. I also get the mouth sores but folic acid works better for me than anything else.

I sure hope you find out what is wrong and that you get proper treatment in a timely manner. Rosie is right many of us waited years for a dx but if you are lucky and get a good rheumy that is up to date on Lupus it may not take you as long. Please keep us updated and feel free to ask more questions.
Posted 1/10/2008 6:02 PM (GMT 0)
Thanks all - I'm also starting a exercise regimin to try to eliminate "lack of exercise" as a cause, but i have a pretty active job in the summer and still have the symptoms - But at least i'll be able to say that I do it. And hopefully it will give me more energy. Tired of being grumpy though - not really in my nature. Really...honest!! ;o)
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