Saw the doctor today

This is what my old labs done 10/20/05 and 12/28/05 were:

ANA 1:1280

Pattern: Homo

reference for the 3 ENA is <20

ENA RNP: 57-MCTD

ENA SSA: 123

ENA SSB: 41

Starting Mid-2006 labs all normal. They are still normal AAARGH!!! The Rheumy was great she really listened and believed me that I was in pain WOW!! That is new :) But she does not want to treat me as if I have sjogren's or MCTD because of the negative labs for so long. She said I was a confusing case because I fit a fibro diagnosis except no tenderness in any of the 19 spots. She does want to treat my pain with skelaxin and lyrica. I took Lyrica before and it made me sleepy but at this point I am willing to try anything to feel even 1% like I am 31 yrs old and not feel like I am 80 yrs old. She said if I do not get relief from these 2 meds she wants me to see a pain management doc. She said without positive labs she does not feel comfortable treating me with pain meds. I am happy she understood me and believed my pain is real but Why can't my labs scientifically prove how I feel. It is so frustrating.

Did anyone else ever go through this during the early years of their disease? Should I look somewhere else?

Thanks,

Kasey

Thank you Catzz I will do that. I have finally found a professional, well educated, and compassionate Rheumy so I will stick with her. My first Rheumy was like her but he was so busy that if I became sick or needed to see him they would have an appt 6 weeks out or would tell me to see PCP and PCP would tell me to go to ER. I know he was good but I did not feel with him being so busy that I could get the care I needed.
I pray everyone else out their still searching for a good Rheumy will find the doc they deserve too.
-Kasey