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New Rheumy-it was terrible..

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Posted 2/21/2008 9:38 PM (GMT 0)
I seen a new Rheumy yesterday, he asked me why I thought I had lupus? I told him the on-set symptoms I had when first dx, he said if I had no kidney involvement,  seizures and phycosis (sp?), then he said I don't have Lupus.  I told him 3 diff. DR's have confirmed that I do.  He then said 'Well, I will do bloodwork, and that a pos. ANA does not comfirm Lupus'.   He then asked my why I was there?, I said I have new symptoms-neck and pain gets stiff and I hve elec. feeling pain running frm neck to left leg, almost daily, left hip pain, I can barely walk on some days.  I asked him for something for the pain, he then said 'What type of Norco do you want?' I couldn't believe he told me that. I told him "I'm not here for Norco meds!!" I acually felt like he didn't believe me". DR. said any med I give u the side effects are bad especially on your stomach.  I felt this is ridicoulos!! when I first told him about my back, he started saying "there are thousands of people w/back problems, everyone has back issues" It got to the point that I started to cry a little and I told him I just want something for my body pain.  He then said I def. have Fibromyalgia, I said yes, I know. 

In the end. he didn't give a refill for the pain med I do have which is for muscle spasms. I had more bloodwork done (Lupus panel), I had one done last month, for new primary Dr. which did show inflammation, I told him I already had it done. 

I felt I wasted my time there, HB was very upset, wanted to see the DR. and ask him why he didn't believe I Had Lupus, when other DR's confirmed it and that I needed some pain med, but Dr. wasn't avail. anymore.  Also, I have never heard of phycosis, as being part of Lupus. Has anyone?

 

Posted 2/21/2008 10:12 PM (GMT 0)
It is fairly rare but yes psychosis can be a symptom of CNS lupus. I would find a different rheumy or go back to one of the doctors you saw in the past. This one is a total idiot.
Posted 2/21/2008 10:23 PM (GMT 0)
I'm def. going to ask for new Rheumy. I also, agree w/you. its just so fruastrating. Believe me I wish I didn't have Lupus.
Posted 2/21/2008 10:25 PM (GMT 0)
I had one tell me to go take oscal and go on the south beach diet and do not take any more meds.
Posted 2/21/2008 10:26 PM (GMT 0)
It does sound like you ran into a very bad doctor.....with a lousy bedside manner, to boot.
Posted 2/21/2008 10:27 PM (GMT 0)
(((( hugs)))) I am so sorry to hear you had to go through this but unfortunately it's a necessary evil. It's time to move on to the next doctor. Most of us have seen multiple rheumy's before getting a proper dx. There are SO many rheumy's that are NOT up to date on Lupus and there are a lot of them that only look at blood test results, not symptoms not family history, etc. It's totally ridiculous. Also when you go into a doctor's office telling them you think you have lupus, some of them get offended and I think some doctors (the good ones) appreciate all the research we do.

What doctor dx you? Did he put you on meds? Can you get a copy of your medical records and take with you to your appt with your NEW rheumy? I would suggest after you find a new one that you drop in one day to see what kind of patients are sitting in he waiting room. If they are ALL elderly I wouldn't waste my time, I know that may be harsh but I learned from experience.. those are the ones that are NOT up to date on lupus and want to see everything in black and white, they want to see kidney damage, pleurisy, etc. Simply asking when you make the appt if the doctor specializes in lupus is not enough, they will tell you anything. Their opinion of specializes may be 2 patients. I am only speaking from experience maybe not all docs offices are like this.

I do hope you get some answers soon! Take care
Posted 2/21/2008 11:08 PM (GMT 0)
Thanks for the responses!! The DR's that Dx me 1st was my Cardiologist (due to my mom had Lupus too). Waited 6 mos, for primary DR to DX, she then sent me to a Rheumy, which was my 3rd.
No, this new DR did not give any new meds, he said to wait till bloodwork comes in. I will take my old rhuemy's med records to the next new DR.
I just wish I had my old Ins. plan, it was an "PPO", only because I didn't have to wait for referrels like I do now. I also had a GYN appt same day, new DR did a Pelvic exam and said I don't have an Ovarion Cyst, I told her in May of 07' I was told I did. DR had my records on computer frm old Gyn. Then she said ok I'll do a sonogram, she pulled it into the room, she found a Cyst on left Ovary, Dr said there was a CYst w/in a cyst, she then said you have strong muscles in there thats why I didn't feel one. This upset me too, because I was going to leave thinking I didn't have a Cyst anymore, I was able to have an ultrasound and another sonogram w/in 1hr by another examiner.
These Drs were ridiculos, I was thinking may the rhuemy could have sched. an x-ray and the GYN wanting to do an ultrasound. Sorry my spelling has been very bad lately, I use to be good,,
Posted 2/21/2008 11:18 PM (GMT 0)
I am so sorry you no longer have PPO insurance. My having PPO was the only way I was able to see a rheumy and finally get dxed. Hubby hates his job, it pays minimum wage which means no money, but he won't leave because the insurance is so darned good. Plus he works for a non-profit which means if/when he leaves no cobra insurance. So he would have to get a really good paying job so we could pay for health insurance for the wait time for a new policy through a new employer. It sucks big time.
Posted 2/22/2008 4:48 AM (GMT 0)
There is no reason for this kind of insanity to still exist in the medical profession! It is beyond ridiculous! Even if a physician thinks you don't have a "condition" the condescending remarks, the sarcasm is uncalled for. Just do the test and make a diagnosis or rule out!! How about some professionalism at least, if you can't have compassion. And by the way, when you don't have compassion maybe you should consider another vocation! ARRRRGGGGHHHHH, sorry for the rant. I really think it's time we start calling their hand on this junk! Judy
Posted 2/22/2008 3:12 PM (GMT 0)
Uhg!!! I get so frustrated when I hear about docs like this who seem to want to believe that people aren't sick and that you have to prove it to them. Obviously this doc isn't aware that there are plenty of people who have lupus without organ involvement. Run, run, run to a new rheumy who respects you and the previous docs who diagnosed you. It really stinks that your insurance changed.
Posted 2/23/2008 3:45 PM (GMT 0)
Hi sweetie, I'm so sorry you went thru all this. I agree with stacie ask how old the doctor is and if they know anything about autoimmune disease. Not all rheumys do.
My first rheumy was born before the dead sea was even sick! What a jerk.
He told me that he read in a newpaper that people with a possitive ANA means that they are perfectly healthy. Gee imagine all the time he spent in school. Just to turn to the newpaper for all the answers.
Like the others said run do not walk to the nearest new rheumy. I know insurance is such a hassle. I hope you can find a new rheumy that actually doesn't have his head where the sun don't shine.
hugs
carol
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