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Posted 4/8/2008 5:50 PM (GMT 0)
Hi All,

I want to know the type of pain that is typically ''Lupus pain''.How do i differenciate typical aches and pains from Lupus pain?? I know that sounds silly but i just dont know anymore.I'm an active person and if i do too much in a day my knees KILL ME  at the end of the day.Even my ankles will hurt.Is that related to Lupus or am i needing some better sneakers with more shock absorbers?? My pain is pain with movement only though.It's not predictable and can be on the side of my knee one day and the pelvis,lower back and or ankle on another day.It's typically pain with movement though so if i just rest and watch TV;i dont feel any pain.I then take some advil and the pain subsides.

Is Lupus pain felt even at rest??

Thanks for reading my post.

Fran

 

Posted 4/8/2008 8:22 PM (GMT 0)
Hi Fran.  I have been having horrible pain lately.  I have lupus and fibromyalgia and my rheumy thinks this is mostly fibro, so he doesn't want to increase my prednisone (wisely). I haven't been able to get out of bed a few days of the last two weeks.  I frequently feel some relief if I don't move. Yesterday I woke from a nap, opened my eyes and said "don't move", but then I had to pee *&$# Most days every inch of my body hurts and I also get arthritic pains that travel, like you describe. Flexeril helps, but the pain is always there, every day. I'm waiting for some narcotic patches via mail that my rheumy prescribed. I also take celebrex and arthritis tylenol twice daily. Lupus sucks.  Love, Butterflake

Posted 4/8/2008 10:26 PM (GMT 0)
Good shoes is always a must, so make sure yours are as good as you can possibly afford. I never know which of my conditions is causing my pain half the time. Look in my signature and you will see what I mean. I have been in pain for so many years that I really don't recall what it felt like not to feel pain. Thus I have learned that if I am not active I can have milder pain days and if I am active the pain skyrockets. Then again there are days I do nothing and hurt so bad I want to curl into a ball and die. It is really unpredictable. It might be best if someone who has only lupus answers your question but I am not sure how many on this board have ONLY lupus.
Posted 4/9/2008 3:49 AM (GMT 0)
Hi Fran,

   It can be hard to tell which disease is causing which symptom sometimes since some of them mimic each other. For me, the fibro is always muscle pain. My knees stay swollen all the time from RA and I have deep joint pain with heat in other areas as well.

   I think the traveling pain from one spot to another is the lupus pain, for me anyway. It may just hurt for a few minutes or hours and go away. Now thats just my opinion, the others may disagree.

   I hope this gets better for you soon. Take care and keep us updated. You will be in my thoughts and prayers.

                                                              Babs

Posted 4/13/2008 7:43 PM (GMT 0)
Hi-my lupus pain mostly feels like the flu-aching body all over.  Sometimes I'm just achey from the hips down.  Mostly near the joints.  Since I have been getting treated with prednisone and methotrexate, my knees do not hurt nearly as much as they used to.  They used to feel like someone hit me with a tie rod across each knee-I couldn't walk comfortably and it would make me cry when I had to get up off a chair.  I used to run alot and now I occasionally run a mile without too much pain.  A good pair of shoes helps me-but I also work a job full-time at a bank and it can be hard to find comfy shoes for a job like that.  Try not to let yourself become inactive, but maybe even cutting your workout time down a little and taking it easy on your knees can help with the pain.  I used to ice my knees every night-and when I mentioned this to my dr. he told me this wasn't normal and suggested an anti-inflammatory to help.  I would suggest talking to your doctor if you are in too much pain, thats what they are there for.  Good luck to you:)
Posted 4/14/2008 2:19 PM (GMT 0)
I just thought I'd tell everyone my pain update. My rheumy called in a script for darvocet to help me until the Rx patches arrive.  Friday was a good day and I took time off work to run erands with my B/F.  Saturday I slept many hours 'cause of methotrexate/pain and yesterday I felt well enough to do some heavy housework. Woo Hoo! Of course I did too much, but it felt so good to have my pain under control! Today my pain isn't too bad. Over all my pain is improving. Oh, and throughout this flare I continue to do my Ab Lounger, 30 sit-ups most days. If I can get out of bed, I can do my sit-ups. I started using the Ab Lounger 6 months ago. I've lost 8 pounds and there is muscle under my fat tongue BTW, I work full-time, but have a tele-work set up and only go into work 2-4 days a month. So, I'd better get back to work!  Love to All, Butterflake

Posted 4/14/2008 6:00 PM (GMT 0)
Hi Donna,

   Tks for the update. I'm glad to hear your pain is improving..... yeah . Congrats on the wt loss and doing the Ab lounger on a regular basis...Thats awsome!  I hope you continue to improve with each passing day. Take care and keep us updated. You are in my thoughts and prayers.

                                                          Babs

Posted 4/15/2008 2:15 PM (GMT 0)
Hi Babs. Thanks for the reply and well wishes! I hope you're doing okay too.  Love, Donna

Posted 4/15/2008 2:23 PM (GMT 0)
Fran, I'm happy to hear that you're getting some relief. When I read Babs' response I completely agreed with what she said. I don't know for sure if certain pains are from lupus or fibro either, but like Babs, I believe the muscle pain is from fibro and the joint pain is caused by lupus. Whenever I have too much pain (of any kind) and I increase my prednisone, the pain diminishes greatly or goes away. That points to lupus, but then, lupus doesn't cause muscle pain that I know of. But isn't it lupus that causes flu-like aches and pains and low grade fevers? It's very confusing, isn't it.
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