DHEA for Lupus

Anyone heard about taking DHEA to help with Lupus symptoms?

Wondering if anyones tried it, had good or bad experiences with it, etc?

Fill me in... I'm thinking about it.

I've got a hormonal problem going on, and would like testosterone as well, but have no clue where to buy it, or how? Any suggestions on that too, through my way. I believe if we can get rid of the estrogen dominance, with either progesterone, testosterone or both...it would relieve many symptoms---especially menstrual.

Thanks

Katie

Katie, several years ago I read about DHEA and was really tempted to try it and even bought some from a health food store, but I chickened out and never tried it. I'm afraid to take it because right now most supplements aren't regulated through the FDA, so you never really know what you are getting. I was also leary of some of the possible side effects like facial hair. Now I'm on a good combination of meds that are working pretty well, so I haven't looked into DHEA for a long time.

Hi Katie:

I have taken DHEA per my Rheumys instruction. I took it for about 6 months back in 2003, I honestly can say it didn't make a difference in my condition. I've been flaring for almost 3 years now, I truly think that since I've got several disease going on, that they are all fighting against each other and making me very sick. My doctors are at a point where they just don't know what to do for me.

I'm in pain day in and day out. I never have a moments peace from the pain and fatigue. I'd recommend that you let your doctor offer you plaquenil and see if it makes a difference. Plaquenil is the medication that has the least side effects. Lots of Rheumys patients w/o having a firm DX. Sometimes they aren't sure what you have, whether it's SLE. UCTD, or MCTd, they treat you symptoms.

I hope that you can get some answers and that you start feeling better real soon. Welcome to the forum and if I can be of any help just ask.

Take care,
Barbara