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New symptoms. What the heck is going on?

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Posted 7/31/2008 3:21 AM (GMT 0)
Ginny,
Neck pain is so miserable just by itself. I'm so incredibly sad that you are in so much pain. Have you ever been given IV pushes of solumedrol. I know we dread these things, but every time I have a major flare and am hospitalized, they give me the ivp's of solumedrol (which is prednisone in very high concentrated doses) it stops my flares and the pain in their tracks. I wish your doc would put you in the hospital and fix you! Please know that you are in my prayers and I am asking my prayer partners to pray for you tonight! Love ya, Judy
Posted 7/31/2008 3:27 AM (GMT 0)
Oh Judy, you're the best!  Prayer is what I need for sure. I have my whole family doing just that too.  Actually, I'm feeling quite a bit better tonight.  Still loads of pain everywhere, but the malaise, flu-like feelings are gone. My fatigue isn't quite as bad either.  Maybe the 20mg of prednisone is finally kicking in.

 

I agree with you. Neck pain, in this severity is almost making me a bit mental.  I did a course of physio from January through March this year and it helped tremendously.  I will have to go back and have more treatments.  I am going to wait though until I see my rheumy in August.  I don't want to mask what's going on. Know what I mean?  If I'm going to get a proper diagnosis, I need to be having the symptoms! 

 

I've never had I.V. steroids for pain management.  I've never been in pain this bad until now.  So we'll see what happens.  Thank you for the suggestion. It all gets filed in the "health section" of my brain!

 

I'm praying for you tonight too Judy. I already prayed for you twice today :)  I hope you're feeling some relief.

 

Blessings,

Ginny

Posted 7/31/2008 6:10 PM (GMT 0)
More weird and wonderful stuff today.  I weighed myself on Monday or Tuesday, can't remember. I was exactly 175lbs.  Today, I weighed in at 169lbs.  So what the heck! I'm on 20mg of prednisone, and I've lost 6 lbs in 2 or 3 days?  I haven't had a raging appetite, but I am eating. 

 

I put a call into my rheumy's office just now.  I had blood work done on Monday, and I'm wondering if I'm anemic.  The fatigue, and now this weight loss is so abnormal for me. 

 

 

Posted 7/31/2008 8:38 PM (GMT 0)
Ginny,
I am really concerned about you. I hope your rheumy wants to see you immediately. Thanx for your prayers. I've been praying for you today too.
Keep us updated. God Bless You, Judy
Posted 7/31/2008 10:09 PM (GMT 0)
I'm concerned too Judy.  Something is not right here.  The nurse from my rheumy's office never called me back today. Good thing I can at least see my family doc tomorrow morning.  My rheumy is on vacation until August 11.  Not sure if the other rheumy in the office will see me.... I'm super complex, and in the past, he hasn't wanted to "screw me up" so to speak. 

 

Thank you for your continued prayers Judy.  How are your eyes today? 

Posted 8/1/2008 12:49 AM (GMT 0)
Oh ginny, I hope your family doc can help. I wonder if the rheumy's office hasn't called because your rheumy isn't there. Someone needs to figure out what is going on with you. I'm sending prayers your way.
Posted 8/1/2008 1:26 AM (GMT 0)
Hi HIppi,

 

You're right.  Someone needs to get back to me.  Maybe I'll hear from the nurse tomorrow.  Perhaps a call to her from my pcp would be helpful too.  This is the most odd, unusual flare up I've ever had.  I can't make heads or tails of it.

 

Thanks for the support and prayers,

Ginny

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