Help - Recurring UTI like symptoms - What is it?

I have had Lupus for 6 years.  It has been aggressive.  Now I am experiencing UTIs or something like a UTI.  I am miserable for a few hours.  By the time I get a doctor's appointment, the symptoms are gone only to recur within a week or two.  I have had a lot of major organ involvement with my lupus but I am new to kidney involvement.

Any help on what this might be?  Do I need to get in to see my Rheumy?

Thanks for the reply.  I have a call in to my Internist right now.  I hope to get relief right now but I will probably contact my rheumy to follow up on why I keep having them.

I was happy to find the forum.  I had another forum I followed and it is no longer there.  I know how important the information and support from others is!

My lupus started with a stroke.  Since then I have been on Coumadin to control the clotting.  I have had several rounds of cytoxin/solumedrol.  I have been doing well for the last 6 months.  I am not on prednisone at all right now.

hi oklupie, I've had some what I can only discribe as weird things happen that felt like uti's since I got sick. Most of them have finally disappeared with plaquenil treatment. Occassionally I wwould really have a UTI but most of the time it was just the burning pain and symptoms of UTI but the tests were neg. I never did figure out what caused it but I havn't had one in about 18 months. Like the others said yes anytime a new symptom appears you need to let your doctor know. Oh I know this might sound weird but I have what is called a tipped bladder. I would have to go to the bathroom but then I would just set here a pittle a little. My doctor suggested that I move side to side and front to back while I was on the pot. and it would help to remove the rest. It did seem to work. I don't know if that was causing irritation from not emptying my bladder but heck if it works it works. I just thought you might give it a try if that is an issue for you.

welcome to the group!
carol