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Posted 10/1/2008 11:39 PM (GMT 0)
Hi guys. I am going on 4 months with these pulsating/deep pains that stab my body in different areas-mainly feet, toes, fingers and sometimes large muscles. The extreme joint cracking has not stopped yet either.

Now I have non stop muscle twitches-EVERYWHERE. I had a nerve/muscle test and was cleared.

Is muscle twitching a sign of lupus? My blood results continue to come back as NORMAL. I am going to another rheum tomorrow for a 3rd opinion.

Feedback appreciated!

Posted 10/2/2008 3:49 AM (GMT 0)
Hi King, I just wanted to say I hope you get some answers with your new rhummy sometimes you have to hunt around to find the right one. I actually have only had muscle twitches when I would be on percocet. So it was a reaction from my pain meds. But it was really weird and quite scary. I hope you get some answers.
let us know
carol
Posted 10/2/2008 4:45 AM (GMT 0)
Thanks so much.

Do my symptoms sound like Lupus to you? I will let you know what they have to say. Thanks again

Posted 10/21/2008 1:13 AM (GMT 0)
Hello King, You and I share the exact same symptoms!Mine started almost 4 months ago with a very sore right shoulder and cramping hand.I soon after became very anxious then one day I felt something that shot across my back into my left side and from that day the pain spread all throughout my body.I also feel a sense of vibration or a strong throbbing which has really scared me. I also have done EMG, blood tests, brain mri which were all normal however they did find that I have a herniated disc in my back. I started taking celebrex for imflamation and xanax for anxiety, the pain has eased slightly but when I get nervous the throbbing vibration gets worse, however the doctor did say that when a disc is hreniated it puts pressure on the spinal cord which can release a chemical and cause that sensation. I will be getting my first steroidal injection into the affected nerve and will let you know if this helps. Maybe you should look into an mri? I really think alot is stress related but still unsure.I know it is extremely annoying and will let you know if anything helps...ps check your B12 level, it could be that also....
Posted 10/21/2008 3:16 AM (GMT 0)
Wow, thanks so much for your response! My pains jump around my body--for example a toe will throb for 30minutes, or I will get a one minute pulsate in one of my fingers (usually my ring or pointer finger), ankle, shin...Ahh, the vibration feelings hit my feet (again one at a time) about a wk after the onset of this. Then came the muscle twitches -everywhere, that has been going on for a month. Finally, I have had a right sided headache for 3 wks that comes and goes.

It is interesting as when the pains first hit, when I would bend down (to pick something up) I would get a nerve shock pain at the bottom of my foot, it seemed to strike right when I would reach my knee. At that time I thought hmmm this must be my back. This only last a couple days.

So I hope all of my issues are related to my cspine issue. The reason why I am not sure is also when a lot of this started my joints started to crack to the EXTREME (15 times in 10 minutes once!). Maybe that part is from stress due to not knowing what the pains are/were in my body? Not sure. All my blood work comes back great. I have prob had 100 viles drawn at this point.

Can you describe your pains more?

Thanks for sharing!

 

Posted 10/21/2008 12:01 PM (GMT 0)

Hi king, trust me I know how you feel and I know you are as concerned as I am. Unbelieveably this started literally the day I turned 40

 which was 4 months ago. I also have extreme popping and cracking in the shoulders and knees and my right ankle, my muscles twitch

throughout the day in my calves and arms sometimes feels like my ankles and palm of my hand too. I would feel a sense of vibration on

the inside of my body and as i've calmed down recently it's gotton better but seems to worsen a bit after I work out.The pains are

random and come and go quickly this morning it was my shoulder sometimes its in my calf and ankle or hands, also pins and needles

feeling in my  hand and left foot, also pain in my under arm at times, and I also had a shooting pain in my right side of head. My

chiropracter explained to me that there is a nerve right behind the neck that affects that side of the head and when he massaged it for

 me I felt it in my head! When all this pain started I realized I was in a very anxious state and was drinking alot of caffeine which may

 have aggravated the situation. Definitely stay off the caffeine! Xanax helps alot to calm me down as does excersize. I know it's

scary what's happening to us especially since as for me anyway I never experienced any pain until 4 months ago, but have faith that

 as time goes on things will go back to normal or better. I have found that positive affirmations are helping alot too. If you're a book

 reader,"The Power of the Subconcious Mind" is an excelent help for what were going through. Let me know how you're feeling and if

 u learn anything new and i'll do the same.... turn

Posted 10/21/2008 5:20 PM (GMT 0)
Hi there! So what do you think the cause of your symptoms are from? Your back, lupus or anxiety?

Where is your herniated disc? See, they did my full spine at first with my brain aside from cspine-it was clear, mild ddd in the middle of my back. However, I asked about my cspine so they did that. Last wk they said c4/5 is cracked and protruding on the surface of my spinal cord-so that could be the cause of SOME of my issues-prob the buzzing, headaches and maybe the twitching. Not so sure about the pains and of course the joint cracks. Yesterday morning I counted and cracked 18 times in one hour. I am only 33 and sound like a 93 yr old! I really have no clue what else would cause joint cracking and pains aside from lupus, thyroid or arthritis (which I dont have)

My pains are so odd. For example, today I got into my car and my pointer finger got a deep toothache pulsating feeling for about 3 minutes-then it was gone. Then I was walking into the office and it was my left knee-it felt like the pain you have when a joint needs to be cracked.

I get the shooting head pains too...mine is behind my right eye, and the headaches can be intense. I do think this is from my neck.

So...anyway, I go to see another neuro today to get feedback on my cspine MRI.

 

Posted 10/22/2008 10:35 PM (GMT 0)

Hi! Well I was tested for lupus at leat 3 times so its not that and yes they do suspect some oseoarthritis in the knee so i'm sure thats

part of the problem,  but oh I forgot to mention that I have recently also found out that I have a 45 degree curvature of the  spine

which you could never tell by looking at me and never knew till this year! So that imbalance of my skelaton must be causing alot of

extra pressure on certain parts of my body. Trust me every pain you described I have felt and still feel at times but like I said since i've

stopped panicking about it and excersizing it's less intense. This dreadful vibrating is the scariest part and i'm going to really talk to

my doc about it next week. I have a feeling the c4/5 is the reason for most of your issues. All my doctors say stay away from

chiropractors but I don't care I really feel the adjustments and the stretching of my spinal column that he does is really helping. If you

 can find I really good one as I have I would look into it and bring him your mri. more details soon...

 

Posted 10/23/2008 1:35 AM (GMT 0)
Muscle twitches are not usual signs of lupus, but they certainly do not exclude lupus. If you meet 4 of the 11 lupus criteria (see link in my signature) you might want to see a rhuemotologist for further evaluation. Hope that helps,
Posted 10/23/2008 2:55 AM (GMT 0)
Thanks for sharing this!
Posted 10/25/2008 4:14 PM (GMT 0)
im going through the same thing..i hurt everywhere..my muscles twitch all over my body, my arms and legs cramp..my fingers and toes even hurt...my doctor did alot of blood work and saw that my b12 vitamin was VERY low, and put me on prenatel vitamins...i hope it works im going crazy..
Posted 10/25/2008 5:11 PM (GMT 0)
What are you pains like? Quick and pulsating or there all the time?

I am surprised she is not giving you shots?
Posted 10/25/2008 9:14 PM (GMT 0)
Jan, wow I really feel for you. Today my face on one side has not stopped twitching and the pain is in my toes too and everywhere else. I'm going to have my doc test my b12 next week though I already started 500mg on my own about 2 weeks ago but no improvement. I'm so over this!!!4 months of this is long enough!
Posted 10/25/2008 10:09 PM (GMT 0)
you might want to get vitamin d levels checked as well as calcium and electrolites like potassium.
Posted 10/25/2008 10:16 PM (GMT 0)
Mary we have such simliar problems!  My dr does not seem to think mine is from lack of curve in my neck and the stenosis, but the NS will give me a btr idea. It would  NOT explain my constant joint cracking though.

I had my D, b 12 and full metabolic checked and am good. My d was a LITTLE low but not a big deal

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