HealingWell
Search Close Search
☰

QT Is it normal to feel so cold??

Support Forums
>
Lupus
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/19/2008 11:23 PM (GMT 0)
Since being dx with lupus, it seems I'm suffering badly with feeling cold. Even with the heat way up I'm still shivering uncontrollably!!
I was really just wondering if this is normal amongst you guys. This is all so new to me, and I find I'm suffering with new & different
symptoms more or less on a daily basis. I've tried to research things, but it all sounds so confusing...

Is this all in my mind... Help
Posted 12/20/2008 3:43 AM (GMT 0)
Are you running a fever Vicky? I ran a temp of 99.5-110.5 for almost 3 months straight. It was one of the main things that got everyone really looking at what was going on with me. The fever preceded the swollen and inflamed joints, mouth ulcers, and fatigue. Also, have you lost weight recently? The more weight I lose the colder I get. My house is a comfortable 71 degrees. Everyone is dressed in jeans and tee shirts. Me, I have on long underwear tops and bottoms. I have a total of two layers on the bottom and three on the top. And I am finally not cold. hope you feel better soon.
Posted 12/20/2008 10:49 AM (GMT 0)
I would agree with Ides. Are you running a fever? I am also very sensitive to cold, and if I have cold drink or gets too cold, I will shiver too. This will go away when I have a hot drink or when I stay in a warm environment. I always have to wear clothes to keep me warm. However, cold and uncontrollable shivering for a prolong period may indicate you have an infection. Please consult your GP or PCP.
Posted 12/20/2008 3:28 PM (GMT 0)
That's been one of the problems I've had.  I get sooooo cold in the winter, but then come summer I just can't tollerate the heat.  My ideal room temperature is about 68.  The cold makes my joints hurt worse then normal, but the heat brings up the rash and headaches.  At least my headaches are down to about once a week as opposed to three to four times a week.  I got a pair of those footed PJ's.  I was so jealous of my kids because they always look so snuggly and warm, I keep soft gloves in the pockets and drink coffee all day long. 
Posted 12/20/2008 8:38 PM (GMT 0)
Thanks for your replies. My temp will run between 98.7 to 99.9. Then it'll nose dive to the 96's & 97's. I think maybe it's
this fluctuation that's causing the problem...
It's good to know that I'm not the only cranky one going around the house in 2 sweaters then maybe a cardigan on top, I
even keep my shoes on indoors, because I'm too cold for my slippers.
The worst part is when I go to the bathroom, just having to pull down lower garments start the shivering sequence. I guess
I'm becoming a poor old gal!!
Posted 12/21/2008 2:02 AM (GMT 0)
Vicky,
When i'm anemic I can't tolerate the cold. Another thought I had when you mentioned you can't tolerate the heat either is you thyroid...have you had that checked lately? That can affect temperature intolerance. Just a thought! Judy
Posted 12/21/2008 3:53 PM (GMT 0)
Vicky, another thought I had about the cold is Raynaud's. I don't know if your doc has mentioned it or not, but you could look it up online and see if the symptoms match yours. Raynauds mainly affects the hands and feet. My temp runs crazy with lupus too. Sometimes I have a fever and other times it dips really low into the 95's and 96's. I notice I feel rotten if it's low of high. I hope your doctor can help you figure out why you are having a hard time with the cold. Take care
Posted 12/21/2008 5:07 PM (GMT 0)
Vicky,

Lupus and other ai diseases are systemic and screw around with our body thermostats.  First I was too warm and then cold.  If you have raynauds that does not help with the cold.  Keep in mind that raynauds can affect far more than just your fingers and toes.  If you are less active and more sedentary that is also a problem. 

Lots of things can impact your body heat regulation. 

Bill

Posted 12/21/2008 9:41 PM (GMT 0)
Thanks again guys. Isn't all this learning fun LOL
✚ New Topic ✚ Reply