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Lupus
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Ree.Ree
New Member
Joined : May 2009
Posts : 6
Posted 5/27/2009 10:19 PM (GMT 0)
I am the only one in my area that has any form of lupus. I would love to talk to yall that have it because no one around here can understand me.
i would rather talk about
it in chat so reply to this post and i will go to chat!
thanks!
puccini914
Regular Member
Joined : Jun 2008
Posts : 363
Posted 5/27/2009 10:52 PM (GMT 0)
ReeRee, I don't chat so well as my hands are very painful today, but I'm curious as to where you live. You never know what kind of support may be out there. I live in a very rural area of North GA and there are several people I know with Lupus and RA as well. It takes me forever to type just this little bit. Sorry to hear you're having a bad time and I'm sending you happy thoughts and prayers.
Ree.Ree
New Member
Joined : May 2009
Posts : 6
Posted 5/27/2009 11:21 PM (GMT 0)
i live in WA state.
AlwaysRosie
Veteran Member
Joined : Jan 2005
Posts : 8616
Posted 5/28/2009 12:11 PM (GMT 0)
Hey ReeRee . . . Jennifer gave you a good link. Under "Services" they talk about monthly support groups. You can call: In Seattle call 206-546-6785 Outside Seattle call toll free 1-877-774-2992 and leave a message and they'll get back to you. It looks like they have packets to mail out and they would know where your nearest support group meets. The local support group (even though it isn't too near my home) was really helpful to me because I asked the other members what Rheumatologist they used and it helped me find a doctor who finally was able to treat my symptoms. I remain in diagnosis limbo . . . but lots of us have no definitive dx and our doctors treat our symptoms. If you haven't seen a Rheumatologist yet . . . that is the right doctor to see for Lupus symptoms. Lupus is a really tricky disease to diagnose and the rheumy has more training to sort it all out and treat our symptoms. I hope this helps. I don't see you in the chat room right now . . . sorry. Blessings!
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