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Mother of all RASHES!! **See Pics**

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Posted 12/28/2009 8:47 PM (GMT 0)
Okay...this Christmas santa brought me a malar rash and red achey knuckles...which is extremely rare for me.  I think i've only had a malar rash one other time.  So...Saturday I felt horrible, finally drug myself up and went to get in the bath tub and was COVERED in a rash from my axillary down to below my waist on both sides of my body!  It was NOT itching/hurting, but it was horrendous looking. 

So...I wasted my precious time and went to the ER.  The doc said it was staph and sent me home with an antibiotic.  I knew it wasn't staph because i've had it a gazillion times but I didn't argue with him...he was actually very nice, just wrong.

Today, I emailed my doc pics and she said it is def. a lupus rash!  I wish I could attach a pic and show you guys...that is, if I wasn't so very ashamed of my scarred body!!!

Has anybody ever had one like this?  It looks like i've fallen into an ant bed the size of Mt. Everest!!!

Post Edited (MJLD) : 12/29/2009 10:43:47 AM (GMT-7)

Posted 12/28/2009 10:25 PM (GMT 0)
If you want the photos posted, you can email them to me and I'll do it.

Did you mean it is or is not itching/hurting? And did the rheumy prescribe any changes in medication?

Hope you feel better soon,
Posted 12/28/2009 10:27 PM (GMT 0)
Aaaw, I am sorry that you had such a horrible rash. I hope it went away. That does sound pretty bad. I have not had a rash, but just wanted to offer you a listening ear.

Hugs,

Susan
Posted 12/28/2009 10:30 PM (GMT 0)
I am so sorry you are going through this. I have this weird rash of tiny raised bumps along my spine and they itch like crazy, it never fully goes away and no doctor has a clue what it is. I totally understand how a rash can be horrible.
Posted 12/28/2009 11:52 PM (GMT 0)
Lynnwood...OOPS! I meant it was not itching/hurting! I edited it! We are not going up on any meds right now...gonna watch things for a while. The only option I have is to go up on the prednisone and i'm gonna try to ride it out if at all possible.

I'm going to look at the pics again and decide if I have the guts to have them posted...my body is so damaged!!!

Thanx all for your concern.
Posted 12/29/2009 12:06 AM (GMT 0)
OH Judy, that sounds horrible! I am so sorry..... I do pray is clears up soon. Hang in there my friend, you are in my prayers.
Posted 12/29/2009 3:12 PM (GMT 0)
Oh Judy, you must have been shocked and overwhelmed to see that! I pray that it goes away licketty split.

((((hugs!))))
Posted 12/29/2009 3:54 PM (GMT 0)
I had to break down and go up on the prednisone. I woke up with joint pain. I don't need this flare to get out of control and cause more serious issues! I'm fairly certain I did this to myself! I was so excited about being home for Christmas this year and able to participate I WAAAYYYY over did it. Now, I get to pay the piper!

I know many of you are facing more serious issues than a rash and joint pain. You are in my thoughts and prayers. Bless you, Judy
Posted 12/29/2009 5:06 PM (GMT 0)
Judy, those rashes look miserable. I don't know how you keep from scratching yourself to death even if it doesn't itch. Let us know if it goes away with prednisone. Sorry about the joint rash. Hope the pred helps that too.

And thanks Lynnwood for posting the pictures. I've never seen that kind of lupus rash before.
Posted 12/29/2009 5:25 PM (GMT 0)

Hi! M,

I am so glad you thought to a). go to the ed, b). take pictures. Hey, if Lynnwood does post them, we could start a thread with a contest entitled.... Connect the spots! Thank the Lord you aren't itching.

suetoo

ps. i have my blue marker ready!tongue

Posted 12/29/2009 5:42 PM (GMT 0)
LOL! Well, with the size of my body and the size of my rash that could be an all day job!!!! Only lupies could be entertained by a rash!!!

Thanx Lynnwood. Maybe it will help someone in the future. Judy
Posted 12/29/2009 6:00 PM (GMT 0)
hehe, you gals are too funny. But golly...that looks so painful. Phew, I can't imagine ....
Posted 12/30/2009 12:27 AM (GMT 0)
Had to go up again on the prednisone...ARGGGHHHH!!!! The joint pain was getting more and more miserable. So, I tried raising it on my own and it didn't help....Doc raised it again. We're afraid it will spiral things out of control if we don't get on top of it. Crazy lupus!!
Posted 12/30/2009 4:52 PM (GMT 0)

Yikes!

You poor dear, but thanks for sharing. Your rash looks very similar to the 2 or 3 raised white spots I had from my last, and hopefully final, sun exposure rash. Mine come on my arms from driving into the sun, but the rare spot, circumscribed by a reddish circle, goes away quickly, and one time I was able to scruff off the white spot like it was a pimple. Now I am inspired to remember to use my cell phone to take a picture for my dr. I started getting sick way before cell phones were invented, teeheeyeah I have been on prednisone (5mg) daily for the past 3 years, so that helps alot. Now I couldn't live without that stupid phone. I am on my daughter's family add a line share plan which I love, except I got busted for overages on their bill to the tune of $106 in Sept. You should have heard the Verizon folks laugh at the irony of that one! She said if it happens again she will have to take it away for a month. I'd rather be grounded but she said I would just sneak out.

hugs to all,

suetoo

Posted 12/30/2009 6:48 PM (GMT 0)
Judy,

I have had many different rashes over the years, and am still not officially diagnosed. Have an autoimmune disease of some kind, but have the docs baffled. When I have had rashes, and I did at one time have one similar to your pics, my only relief was sitting in a warm bath with aveno bath added in. The pouches you add in look like oatmeal, and take a little rinsing to get out of the tub, but it took coaxing to get me to leave the bathtub because it was the only relief I got. It was heaven. I even got the aveno cream with the anti-itch or whatever it was called for after. Never rubbed my body dry, but patted gently. My family knew that if they couldn't find me, to look in the bathtub. Some days I would go back in 3, 4 or 5 times in one day. Whatever it took. It worked better for my than any meds they gave me. Hope that helps you.

Debbie
Posted 12/30/2009 6:50 PM (GMT 0)
LOL!!! Too funny Sue!!! I remember the first time I saw someone sitting on the Cresent City Connection bridge, backed up in traffic, sitting on one of those old huge bag phones!!! I was freaked! A phone in a car??? Who'da thunk it??? They are handy. That pic saved me a 45 min drive to see my doc!! :9)
Posted 12/31/2009 1:05 AM (GMT 0)
(((Judy))),
Bless your heart! I hope the rash and joint pain gets better soon. It sounds and looks like you are miserable. Keep us updated and take care. You are in my thoughts and prayers.

Love, Babs
Posted 12/31/2009 6:40 PM (GMT 0)
Oh My!! I am so sorry you have that rash...it's looks exactly like what I have all over my chest and upper arms... what causes mine is my dermatomyositis  though (I have a nice scar on my elbow from the tissue sample they took)....When I go through a flare it gets ugly(like now again)....I really hope you get better soon!!!
Posted 12/31/2009 11:22 PM (GMT 0)
It's really not painful or itching or anything...when I went up on the prednisone it started to fade somewhat...however, it did spead to my scalp!

I had a major prednisone blow up then break down today! I feel so guilty and awful!!! I apologized to my family profusely and they understand, but it didn't help me feel better about it! So mad at myself!!!
Posted 1/4/2010 5:09 PM (GMT 0)
that is so odd, i have something like that on my elbow, i have had ot for a week and no matter what i put on it, it will not go away!!! it itches real bad though. ill run it by my roummy and see what she says haha.
I used to get covered from head to toe in hives, omg i wanted to kill my self i looked like a leopard!! my feet would swell so bad that i could not walk, i could not wear my wedding ring, i lost so many jobs over those hives :'(
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