Hair falling out

 I have very long hair. It's falling out a handfull a day. I don't have any bald spots but half my hair is gone. It's so thin I had to buy new hair clips and scrunchis to fit. Friends are telling me that only the meds cause your hair to fall out only I am not on any yet so can your hair still fall out with lupus or what?

  No I haven't been diagnosed yet. The first 2 times I went to see him things were not half as bad. I had a posative ANA 1:1280. I felt lethargic all the time and I have flare ups in my joints.Before He said I have an auto immune disease but he wasn't sure what so he did more blood work, everything but the ANA was negative, He ordered a bone scan which showed I have arthritis in all my joints. he didn't want to treat me untill he knew more. I just take tramadol and ibuprofin. When I get desperate I take my husbands vicodine shhhhhh you didn't hear that.  Well since I saw him last in Dec My hair is falling out, Along with the lethargy comes horrible muscle pain. I'm talkin muscles I never knew I had, Heart palpitations, I have night sweats where I wake up drenched!!!!!  My legs, ankles and feet swell' and I have a great picture to show him of my butterfly rash which is also new. So I am going back to him tomorrow we'll see what he says. I can deal with just about any of these symptoms except for the muscle pain. I can't move, sleep or anything he better do something. Whats scary is we only have 11 rheumy's in this state and most of them aren't takin new patients Post Edited (louise47) : 3/10/2010 9:22:55 PM (GMT-7)

I can totally relate....my ANA finally came back positive so my rheumy decided he had to treat me at this point...he started me on Plaquenil 200mg twice a day. I have noticed that my hair has been falling out...in a more subtle way that made me thinking that I was possibly imaging it...well last night I went to have my hair trimmed and as soon as I walked in the door my cousin (the hairstylist) could tell right away...just by looking at me...that my hair had dramatically thinned out since she saw me last...so basically she confirmed what I had been fearing all along. So it must be pretty bad because she took it upon herself to chop almost all of my hair off! So now I am scanning the internet looking for a nice hat to wear. I had been hoping to hide my illness from my professors at school but maybe it's getting about that time to do some explaining...I just have to keep reminding myself....one day at a time girl!...