Rhuemy sending me to neurologist possible MS

Hi, I have an appointment next month with Neuro, I've beenhaving MS symptoms since

2007-8,don't remember right now.  I have fibromyalgia too. Does anyone here have Lupus and MS?.

This past Sunday, I couldn't get up from bed, my legs were soo heavy, this is still happening today. My pain was from waist area to knees first day, then second all the way down to feet.

I could barley walk, my behind hurt (dear HB), thought it was funny for a minute.

Today, I'm having less pain.

I do have other MS symptoms too, I pray I dont have it. I posted my appointment I had with my Cardiologist dr. in the Heart section.

Sorry if I'm rambling today

 

Hi Syl,

You're not rambling....you sound just like the rest of us here! LOL!

Just so you're aware of ALL of the possibilities, my neurologist thought at first that I had MS too, on top of my lupus and my fibromyalgia, but my MRIs have been clean. It turns out that I have Lyme disease instead, which can both trigger and mimic MS, lupus, AND fibro! Contrary to popular belief, Lyme is very easy to catch, even in your own backyard....you don't have to go camping or hiking to get it.

So at this point, my doctors and I *think* I have at least some of the autoimmune diseases I've been diagnosed with, but because of Lyme's reputation as the "Great Impostor", we aren't completely sure which AI diseases are real and which are Lyme. I'm being treated with antibiotics now for the Lyme disease, but it may take many months of treatment before I feel better (if I feel better). "Neuro-Lyme" is the hardest type to treat, so I don't yet know if I can recover completely.

You may want to suggest to your doctor that he also test for Lyme disease and B12 deficiency....?

I'll join with you in your prayer that you don't have MS! Good luck!
JoAnn

I just finished going through testing for MS as well. My symptoms were 100% MS and we all (me and docs) thought it was MS for sure. But after an MRI of my head and spinal cord, MS has been ruled out. I had no lesions whatsoever in my brain or spinal cord.

There is blood clotting disorder called Antiphospholipid Syndrome that mimicks MS almost identically. I have this syndrome. So the doctors have concluded that the APS is the cause of my symptoms and not MS.

Google "MS and Antiphospholipid syndrome". There's quite a bit of information about the two.

A simple blood test will tell you if you have APS. It's a very serious disorder to have. If not treated with blood thinners, the risk of stroke or heart attack is high. I had a stroke in 2002.

I really hope you don't have MS. To have both Lupus and MS is just a cruel and unusual punishment. Let us know how you're making out okay?