I had an apt with my nephrologist on Friday. I asked him what my prognosis is and he thought about a few minutes and said if things continue the course they are, dialysis will be in less than 2 years. If I stop the medication (myfortic) dialysis would be probably 6 months-a year. But the benefit of diaylsis would be no medications except prednisone. He also then said that if I was on dialysis for 2 years and things quieted down I could do a transplant and USUALLY when a transplant will not have lupus attack a new kidney or at least not cause it to go ESRD. So I guess I have a lot to think about.
Do I stop the medication and feel like a human being again or do I continue on the medicaiton and possibly avoid dialysis for a few years? If dialysis is most likely going to happen, why not get it started and might get off it sooner? Oh, BTW, I have been on Cellcept/Myfortic for a month now and side effects continue to get worse. He does not think prednisone alone will hold the lupus out of my kidneys. He has left this choice up to me and I will need to have a decesion by Friday. I think I know where I am headed but just wanted some other peoples thoughts on this issue.
Just some of my thoughts, thanks for reading!!