I Hate My Life

Barbara..VENT AWAY!,.so sorry you are feeling so awful ..I can totally understand you being over the whole testing/dr thing..
You should spk with your physician prior to your procedure about taking blood thinners. Normally those are held anywhere from one to three days before any surgery.
Hoping all goes well and will keep you in my prayers.

My arms are long enough.
My shoulder is wide enough.
My heart is big enough.
My ears are large enough.
So just lean in friend and let it out.
(((((((((((((((((((((((((hug))))))))))))))))))))))))))))))))))

So sorry you're having a rough time. Please remind the doctor about your blood thinner.

Hang in there, Barb. Many prayers and many hugs are coming your way. We are all rootin' for you.

Hugs,
Mary Ann

Thanks everyone for your support. I emailed my PCM today I'm in so much pain and it really hurts to breath. She replied and suggested I be admitted for pain control. I was seen by the NP covering her patients on Monday, my hubby stayed home from work, when that happens you know I'm bad off.

Well the NP ordered a chest X-ray but not another rib one. Stated there's to much radiation in the rib ones. The chest one looked ok said it's most likely your broken ribs. So I emailed my PCM and she said its probably my ribs, how did I feel like going into the hospital for pain relief. I asked if I could wait 24 hours and what would be the max amounts I could have.

She agreed to 24 hours so if I'm no better around 2:00 I guess I'll be admitted. I can't sneeze, cough or take in a deep breath at all. It hurts so bad to move I just can't take the never ending pain. Will update tomorrow if I'll be spending a few days in the hospital.

Hugs,
Barbara

Thanks Joy I appreciate your gentle hugs. I emailed my Dr at 1:30 this morning requesting to be admitted. Well of course that didn't happen. The federal government shut down because of the weather. For all of 2" of snow, it's just so stupid how they panic about snow here.

I could go to the ER, but I wanted my PCM to handle the admission. My PCM wanted me to try taking the max on my pain meds. My hubby was worried about my complex sleep apena and didn't want me to take the extra pain meds w/o him here.

So he had the day off and I have been taking double of my prescribed pain meds, so far I'm not feeling better. Depending on what the weather does here I may go into the hospital for pain control.

I hope I can sleep comfortably tonight. I'll see how I feel in the morning and also see if Walter Reed is open tomorrow.

Hugs,
Barbara

 

Hi Barbara,

      I am constantly amazed by your spirit, even when the going is so tough.  You give me so such strength and determination.  Hang in there.....a very, very gentle hug has just been sent your way from teh coast.

Laura

Hi Everyone, just a quick update, LOL, ok long update. I came into the hospital yesterday afternoon. My PCM called the ER and the internal med team that would be caring for me. I arrived at 2:00 sent hubby home around 7:45, was finally brought up to my room around 9:30pm.

The whole time I was in the ER I was able to get IV pain meds. Upon getting on the floor they started me on a pain pump. Took lots of photos of my chest and spine. I have broken another rib and they really believe I also have a compression fracture in my spine.

My cardiologist came and did my echo at my bedside in the ER after 7:00pm. He found only a small portion of fluid around my heart. He did find, however, that I had calsifacation of my pericardium. Which isn't a good thing. Most likely will have to have surgery on my pericardium and collect multiple biopsies.

My malar rash was in FULL BLOOM last night and today. Cardiologist wanted to touch my cheeks, as he had NEVER seen my face so red and hot. The on call Rheumy took a photo of my face today for my regular Rheumy. I'm also having issues with my kidneys I am officially on a renal predialysis healthy heart diet. Yup you guessed it, NOT THE BEST OF DIETS. Then Pain Magement came to see me today. The way he was talking I most likely will be here thru Monday. He order a huge amount of oral pain meds, to attempt to wean me off the pain pump. They are planning on weaning me off the pain pump tomorrow.

Because I've been on narcotic pain relief for a really long time I have a HUGE tolerance issue. The nurse was afraid to give me the dose, this afternoon of my oral pain killer. I've managed to cut back on the number of times I've needed to push the button for IV meds.

The on-call Rheumy came by to see me, too. He informed me that I have a SEVERE case of osteoporosis, he's never seen such a bad case in someone my age. I had never met this Rheumy, but he knew me and my case. He actually told me that my Rheumy will be the on call attending starting on Monday, so I will be able to see him then.

I'm suspecting I'll be getting a CT w/contrast tomorrow and an MRI w/contrast. They need a better view of my spine, and I may end up needing an echo that's done from the inside of my throat.. It's like getting an endoscopy but it's of my heart it's called a TEE.

Other than that I'm sitting around and trying NOT to panic and flee in the middle of the night. Will keep you updated as I know more, Hope everyone is having a good weekend and you are all feeling well.

Hugs,
Barbara

Hugs,
Barbara

Hang in there! It sounds like you are getting decent care right now, so that's something.

Oh Barbara, i'm sorry you had to go in but now you can get better. Aren't you just a little relieved that you know what is causing the pain?

Hang in there and know that we are pulling for you. Gentle ((((hugs)))) and get to feeling better.

Here is Barbara's latest update:

Well my weekend has been spent in the hospital. I came in last Thursday and hope to go home tomorrow. Yesterday, was a most upsetting day for me, I'm still not calm enough to talk about what the DIRT bag Dr pulled on me yesterday.

Thursday I go back into the hospital, except at NIH, they are the research study folks. Friday I will have my bone marrow biopsy done, since it's going to be done under GA, I'll go home on Saturday.

I'm suspecting I'll also get a blood transfusion on Friday after my biopsy. I will need the blood but they would prefer I hold out until the biopsy is done.

Other than that what's up for me for the week. Hope everyone have love pain days and have a good week.

Hugs,
Barbara

Oh, Barbara. I'm so sorry that all this is happening to you. It seems like you can't get a break.

I am keeping you in my prayers.

Hugs,
Mary Ann

 

Hey Barbara,

      I agree with Joy.  It's amazing what powerful, strong women can do :).  I am keeping you close in my thoughts.

Laura