Lupus, Seizures, P.R.E.S., severe migraines & peeling from inside of eyelids? Help pls. Tx

Hello. 51 yr old female new to the site having some issues & wondered if anyone having same problems. Have had migraines with visual disturbance prior since 16 yrs old. Was dx with SLE in early 90's. Treated by rheumatologist for first few yrs. After several moves, haven't seen one. When I have a flare up, my PCP prescribes prednisone. Had 2 TIA's 2000-2001. Then stroke in 2005. Neuro said it was due to antiphospholipid syndrome clotting disorder, was put on Coumadin. 3 months of speech & physical rehab to walk, I have no residual effects left. Then in 2007 I had the worst pain on right side of head ever, felt blood rushing in head & could see but unable to coordinate my hands to do what my eyes were seeing. Vision very distorted! Dx'd with P.R.E.S. (Posterior Reversible Encephalopathy Syndrome) basically swelling of the brain. Spent more time at Univ of Chicago. Normally caused by extremely high bp (mine wasn't) or drugs taken after organ transplants, again nope. They determined since this is such a rare disease, at the time only about 200 cases dx'd, that mine was unusual, so chalked it up to the lupus. Eventually recovered, rtnd to work & in 2010 began having grand mal seizures. Was already on Topomax for my migraines, so they increased it and put me on Neurontin and Keppra as well. I'm now on total of 300 mg Topomax, 4000 Keppra, 1200 mg Neurontin per day, and when I have SLE flares, prednisone. Has anyone had PRES? Also, now I'm dealing with terrible dry eyes, which I've dealt with before but now the inside of the eyelids are so dry that they are peeling at times. Anyone have any suggestions for good eye drops, artificial tears? Anyone with clotting disorders from lupus?
Thanks and have a great day! Excuse the spelling in here please ;-)

Thank you acquiesce! I'll look for that here in the Southeast US. Have a great day

You want an eye drop that is a LUBRICANT, that has NO medication, and has NO preservatives. There are several on the market that meet these guidelines.

(this info is from 2 rheumys + 2 eye Drs).

Most drugstores carry at least one eye drop offering that satisfies these restrictions. You can also use eye gels (best at night) if they satisfy these criteria.

Thank you Lynnwood! Appreciate the guidance

Oh you have been through so much - I am sorry! Last spring my ophthalmologist prescribed Restasis for my eyes. Same symptoms you describe. The improvement has been dramatic. It is a prescription but worked so much better than any over the counter I had tried. I hope you feel better.