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ugh, another flare

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Posted 3/30/2014 3:27 PM (GMT 0)
Hi Everyone,

Yesterday started out so wonderful. And yes, work has been stressful and I guess I wasn't paying attention to the brain fog and forgetfulness that was happening on Friday. To make a long story short, I did too much and was not responsible about wearing a hat when I took a long walk in the afternoon....a baseball cap is really not enough. By evening I noticed my face had that beautiful red flush that some of my friends think is a "healthy glow." I also noticed that my feet were achy and swollen. My hands started to hurt and then the fatigue set in. I had a horrible night's sleep, with achy joints in the knees, hands, back, hips and feet. But the most intense was in my right toe. I have never had such discomfort in that joint. It kept me up most of the night!!! This morning I am struggling to get even the simplest of things done. I left the burner going under the pan that we used to cook eggs. I got the microwave going without putting my cup into it to re-heat my coffee. My hips are hurting something fierce. And I realized that I could not go on thinking I could keep up with the chores. I upped the Prednisone to 10 mg, which my doc has instructed me to do. And I will take it easy today...surfing between my cozy chair and my bed. Thankfully, it's raining, which makes it easier to stay indoors. I am actually looking forward to finishing the book I am reading and getting some rest. The 10 mg. should kick in soon and hopefully, some of these painful joints will ease up. If I feel like this tomorrow, I will take the day off from work....something hard for me to do, but I know in my heart if I don't, this flare will keep intensifying. Thanks for listening!! I guess I just needed to vent a little. Hope everyone is doing okay this morning.

Love,
Laura
Posted 3/30/2014 4:09 PM (GMT 0)
Some days are like that, aren't they? I too am having a couple of slow restful days due to some over-doing on Friday. Thankfully my over-doing days are few & far between as I learn to make better choices for myself!

Hope you feel better soonest!
Posted 3/30/2014 8:39 PM (GMT 0)
Yeah, those days are rough. Take it easy and rest today. Here's to more pain-free days.
Posted 3/31/2014 4:59 AM (GMT 0)
I had a biopsy in my face and it came back positive for lupus. I'm 35 with 2 teenagers 14 & 15. So I really don't have much energy to keep up. My husband is Bipolar I and can't handle the verbal abuse from him. It's hard enough to handle my health problems. I also had to have a serious surgery nov 2011 doctors had to remove my colon it wouldn't function. I have major depression from it. I also don't know how to handle everything on my own anymore. My husband told me he was fired again at his job at the railroad for 6 months because of an 18 wheeler accident, he was a passenger inside the train. Anyways, everyday he tells me I'm lazy, worthless I should be at the grocery store working everyday and have at least two jobs. I have to get up in the middle of the night because my pouch will come off. I have severe sleep insomnia,add,and was told by my doctor I shouldn't work right now. My husband wants me to purchase him a new car and he is so lazy he won't even try to make him a drink or food. The day I came home after 4 weeks in the hospital after colon was removed I had to cook his dinner. He's pathetic. I wish my life was not like this in anyway. I have had 10 surgeries and 2 stoma repairs since the colon removed, 2 hernia surgeries, fluid around organs, liver operated on and foot bunion surgery. Sorry for going on, but I had no help during any of this. He moved me 1,000 miles from Texas where I'm from to verbally abuse me and my kids. So having lupus,fibromyalsia,add/ADHD/ low thyroid, permanent ielostomy, rosacea, insomnia, cf and more is depressing. If anyone has any advice please help.
Posted 4/1/2014 1:21 AM (GMT 0)
That's what I love about this site. The support is what keeps me smiling and going on. I had a better night's sleep, and yes, I did manage to go to work today. I had a much easier time of it, and although I am a little tired tonight, it's not like it has been. I am definitely looking forward to putting my feet up tonight.

2Snowbell-It sounds like you've had a lot to carry on your shoulders. The only thing I can say to you is that you have to take care of yourself first and foremost. That is primary. Are you participating in any counseling? It has helped me immensely in the past, especially when I hit rough patches in my life.

Laura
Posted 4/1/2014 10:38 AM (GMT 0)
I'm glad that you are feeling better Oreo. It's frustrating when we seemingly have to pay the piper for doing things in a day that used to be considered "normal".

I don't know sometimes which is the most irritating bit, the pain or the brain fog. I get so upset with myself when I can't pronounce words or forget what I was doing! In all, it doesn't seem fair to me but being the eternal optimist I strive for the bright side in there somewhere! Unfortunately I can't seem to articulate it at the moment because I've over done it myself the last few days!! Yeesh.

Anyway, there was a point in there somewhere. I'll come back to it eventually lol. Oh yes, I was comiserating with you and admiring your ability to take a day off when you need it. It is good that you are being proactive when you feel that flare coming on.

I hope today for you is easier still. It isn't fun to feel like you are walking through waist high peanut butter from the fatigue. Here's to better days!
Posted 4/2/2014 9:53 PM (GMT 0)
i reg.for this site so i woldnt feel so alone i live with lupus and ra for 2yrs now im alone and scared i no longer have a dr i feel im getting worse its like im lost i read and relate to so many people. ill ck this later see if im doing it rite taken a nap
Posted 4/3/2014 12:59 AM (GMT 0)
Welcome, sallya!
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