I am new here and I am sure experiencing the same thing that everyone else has. I have yet to be confirmed positive for lupus but I have had many signs for almost 2 years. My life health wise has become unbearable. I am in constant pain, it mainly started with my stomach, I stopped having periods and my hair fell out occasionally, I have horrible sores in my nose. I feel like I am falling apart. EVERY SINGLE morning I wake up feeling like I am dying, my body feels toxic and I lay there for an hour before I am able to get up at all. I finally got insurance this year thank goodness and am now going full force looking for an answer. I was unable to work in the beginning, lost 15 pounds in 3 weeks only to gain it back then some. The symptoms seem endless but like I said it started and continues with stomach pain as the main issue that keeps me from being able to function normally. I had a positive ANA test, I have a spot on my kidney, an enlarged liver, a Histone ab level of 1.3, horrible nose sores, low grade constant fever, joint pain on and off, eosinophils are double the highest level (whatever that means - if anything??). I am 45 years old, prior to this, VERY healthy, very active - worked out all the time, almost daily, eat really healthy, juice daily, do not drink, never smoked. Just one day 10/02/12 out of the blue I woke in the morning in terrible stomach pain. My life has never been the same since. I am on oxy all day long and it doesn't help much, was given morphine in the ER the other day and it didn't help much - I do not enjoy meds. This has changed my life, I try to be positive for myself and for my family but it's so hard. I feel like a hypochondriac but my pain and symptoms are so real. I know that all of my symptoms may not be related. Anyway, thanks for reading I am just so frustrated
Finally referred to rheumatology today after the Histone AB result.