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Update on Barbara Lee
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Lupus
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8160
Posted 6/11/2015 12:59 AM (GMT 0)
Hello Friends,
Barbara had a chest scan today and before she was even home they called her to come back to the ER, probably to be admitted. It seems she has a blood clot that has grown over the last few months, AND there appears to be a 3 cm piece that has broken off and is in her heart.
Barbara asked that I put up this post and request positive energy and prayers from everyone - sounds like she'll be needing all the help she can get.
Unfortunately, her husband is out of town for a few days, so she's pretty much dealing with this alone.
Thanks.
acquiesce
Regular Member
Joined : Jan 2014
Posts : 360
Posted 6/11/2015 1:41 AM (GMT 0)
Poor Barbara, sending positive vibes her way.
couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 6/11/2015 2:14 AM (GMT 0)
Sending them! I hope someone comes to stand by her.
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/11/2015 6:12 AM (GMT 0)
I just came here on purpose to see any new report on my dear friend, and here it is. thanks for posting and sharing.
So sorry her troubles are increasing, and like me, we never seem to cop a break in the action.
If you speak to her, please tell her David (Purgatory) from the PC group is asking about
her, and still offers her name up to prayer every day.
We both made a pact together, long ago, that despite her woes and mine that neither of us would ever give up hope. She's done an outstanding effort on her part of the deal.
As for me, things continue to worsen. Have lost nearly 110 pounds now in 14 months without trying. A tumor was found in my face (lower left cheek bone area), and the VA is doing surgery on June 23rd to remove it. The ENT surgeon is expecting it to be cancer, if so, it will be my 5th event since year 2000.
Having a full body CT done in the morning. After being without teeth for nearly 9 months, the VA should have my dentures ready for me in about
2 weeks.
Good luck Barb, I miss hearing from you. Hoping for only the best.
David
And my best to all the other members here, even though I don't know most of you personally. You have a good group of people here
Chartreux
Veteran Member
Joined : Aug 2006
Posts : 9664
Posted 6/11/2015 6:00 PM (GMT 0)
Prayers for Barbara and many well wishes, please let her know we are all sending so many prayers and healing wishes...and that we really do care...
UserANONYMOUS
Veteran Member
Joined : May 2011
Posts : 4525
Posted 6/12/2015 12:35 AM (GMT 0)
Thanks Lynn.
Keeping her in my thoughts and prayers.
UA
Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8160
Posted 6/12/2015 12:56 AM (GMT 0)
Turns out the scan was misread, but they've kept Barbara in the hospital today anyway. Nothing like a little panic to kick off a nice Lupus flare, huh? We all hope that doesn't happen!
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/12/2015 2:02 AM (GMT 0)
glad to read this. hoping she dodged the "bullet" this time at least
couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 6/12/2015 2:38 AM (GMT 0)
Whew! That was a close call. Hope she's home soon.
UserANONYMOUS
Veteran Member
Joined : May 2011
Posts : 4525
Posted 6/13/2015 3:08 AM (GMT 0)
Oh wow... It's a relief to hear this! Hope Barbs is okay.
UA
DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 6/13/2015 1:44 PM (GMT 0)
Geez.. glad they are keeping close eye on Barbara but that misdiagnosis was an awful 'kick in the teeth'.
Please let her know Diane says hello, best wishes & am keeping her in my prayers, as always.
And David/ Purgatory I've been checking for your updates too..
Prayers & best wishes hon.
One day at a time.
Chartreux
Veteran Member
Joined : Aug 2006
Posts : 9664
Posted 6/14/2015 12:43 PM (GMT 0)
Well, I hope this hospital stay helps Barbara and that she has my continued prayers...
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/19/2015 2:15 AM (GMT 0)
Just checking back on Barb. Hard to get her situation off my mind. Give her my best. Hope to catch up with her soon.
acquiesce
Regular Member
Joined : Jan 2014
Posts : 360
Posted 6/19/2015 10:31 AM (GMT 0)
Same, checking in. Hope you're doing alright Barbara and the stress hasn't set off a flare. Thinking of you xo
auntkay
Veteran Member
Joined : Apr 2004
Posts : 1215
Posted 6/21/2015 4:46 PM (GMT 0)
Barb i Love you and keeping you in my daily thoughts and prayers!
Barbara Lee
Veteran Member
Joined : Sep 2003
Posts : 2889
Posted 6/22/2015 5:42 AM (GMT 0)
Hi Everyone:
I'm sorry that I'm not addressing each of your individually but I'm just to sick at the moment to handle much. I'd like to thank Lynnwood for starting this thread and keeping the updates together for me. Lynnwood you're always there for us and we really appreciate you more than you'll ever know.
I'm not going to post much right now. I'll put in a bigger update tomorrow, I've been in a major flare up and my breathing has become a major nightmare. My foot and periformsis muscle is a fine mess. Pain 24/7 no matter what I do for it.
Been walking on egg shells here at home and feel that if my body holds on long enough, I'm gonna have a nervous breakdown anyway. Things just aren't the same now with my daughter since she's gone away to college and lived on her own. It's just upsetting that I feel we're at each other all the time. On top of all of that I've managed to misplace my cell phone and wouldn't you know, it's turned off. So, I can't hear it ring at all. I know for sure I had it in my hot little hand on Saturday night.
Please send me more positive energy, thoughts, love and prayers. I need my cell phone, I need my pain to lessen, and I NEED to feel some better. I know a lot of you folks are not doing the best and I assure you I'm reading the posts here and you're all in my prayers. I'll post more after I've had some sleep tonight. I hope you all are sleeping and have a good day today.
Hugs,
Barbara
couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 6/22/2015 7:07 AM (GMT 0)
((((((((Gentle hugs ))))))))))
Glad to hear from you, but sorry to hear you're having so much trouble. I hope you can find your phone soon. Try to think where you were and what you were doing at the time. When I loose something it usually is found down in a seat cushion or laying under a pile of papers.
Chartreux
Veteran Member
Joined : Aug 2006
Posts : 9664
Posted 6/22/2015 2:08 PM (GMT 0)
Continued prayers for you Barbara...Hope you and your daughter can get things worked out, maybe ask her to come and go to a movie sometime...when your up to it...or have a rent movie weekend at home...
Prayers...
Butterflake
Veteran Member
Joined : Jun 2006
Posts : 1650
Posted 6/22/2015 11:49 PM (GMT 0)
Hi Barbara. I'm keeping you in my prayers and sending all the positive energy I can muster. My daughter just turned 30 and she's been distant off and on for several months. I'm too sick to help her in any way and I think she resents it. Oh well, I never understood my Mom, nor did I want to understand her way of thinking. Hopefully your daughter will cycle thru a "nice mood" soon. I love you Sweetie and really hope you get some pain relief soon. Pain makes everyone exhausted. Donna
Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8160
Posted 6/23/2015 3:40 PM (GMT 0)
Hi Barbara,
I hope this finds you with cellphone in hand and with pain lessened.
I'm sure it's hard on everyone to have a college-graduate adult daughter living at home, I hope you have all come to a peaceful place by now. Everyone is probably trying to fit into the old behaviors and the old relationships, but everything is different now so that stuff won't work. Always difficult to forge new paths!
Best always,
DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 6/24/2015 2:16 AM (GMT 0)
Prayers.. as always hon.
cilly
Veteran Member
Joined : Aug 2014
Posts : 1620
Posted 6/24/2015 6:57 AM (GMT 0)
Prayers for you Barbara ,I hope you feel better soon!
UserANONYMOUS
Veteran Member
Joined : May 2011
Posts : 4525
Posted 6/24/2015 12:41 PM (GMT 0)
Hi Barbs,
By chance, is it a Iphone or Samsung? If it is and it's registered with Apple or Samsung, there's a find my phone site onlie that you can use to track the
location or last
location of the phone.
I hope you will find it soon.
Keeping you in my prayers and thoughts.
UA
Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8160
Posted 6/24/2015 1:21 PM (GMT 0)
LOL. I don't think find my phone will tell Barbara if it's in the sofa or under the bed or in the clothes hamper!!!
UserANONYMOUS
Veteran Member
Joined : May 2011
Posts : 4525
Posted 6/24/2015 3:25 PM (GMT 0)
Oh Lynn, you're sooooo right!
I'm going coo coo.
Lol *Shame*
It will just tell her what area it's in which she already knows.
Sorry Barbs...
UA
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